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Family Engagement at the Systems Level: A Framework for Action
Beth Dworetzky1, Clarissa G Hoover2, Deborah Klein Walker3
1Family Voices, 561 Virginia Rd, Bldg. 4, Suite 300, 01742, Concord, MA, USA. bdworetzky@familyvoices.org.
Maternal and Child Health Journal
|March 13, 2023
Summary
This study introduces a framework to enhance family engagement in health systems. It outlines key components and criteria for meaningful family participation in policy and service design.
Area of Science:
- Health Services Research
- Family and Community Engagement
- Systems-Level Health Initiatives
Background:
- Individual-level family engagement in healthcare decision-making is well-researched.
- Systems-level family engagement in health policy and service design remains understudied.
- Meaningful family participation is crucial for effective health services.
Approach:
- A Family/Professional Workgroup with diverse representation was convened.
- A comprehensive literature review of peer-reviewed and grey literature was conducted.
- Key informant interviews were performed to identify best practices.
Key Points:
- A framework for family engagement in systems-level health activities was developed.
- Four action-oriented domains and key criteria for strengthening engagement were identified.
- The framework addresses information and support needs for effective family-professional partnerships.
Conclusions:
- The Family Engagement in Systems framework promotes authentic family involvement.
- Organizations can utilize this framework to improve policies, practices, and services.
- This approach moves beyond tokenistic presence to foster genuine collaboration.
Keywords:
Children with special healthcare needsFamily engagementPartnershipsQuality improvementSystems-changeMore Related Videos
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