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Ethical concerns when recruiting children with cancer for research: Swedish healthcare professionals' perceptions and

Kajsa Norbäck1, Anna T Höglund2, Tove Godskesen2,3

  • 1Centre for Research Ethics & Bioethics, Department of Public Health and Caring Sciences, Box 564, SE-751 22, Uppsala, Sweden. kajsa.norback@crb.uu.se.

BMC Medical Ethics
|March 15, 2023
PubMed

Insights

Recruiting children with cancer for research presents ethical challenges centered on trust, vulnerability, and communication. Healthcare professionals emphasize the need for strong relationships and ethical competence to protect children

Area of Science:

  • Pediatric Oncology
  • Clinical Research Ethics
  • Healthcare Professional Perspectives

Background:

  • Improving treatment and quality of life for children with cancer necessitates research.
  • Recruitment of pediatric cancer patients into research studies poses significant ethical challenges.
  • Understanding healthcare professionals' views is vital for ethical research conduct.

Purpose of the Study:

  • To explore ethical values and challenges in recruiting pediatric cancer patients for research.
  • To describe these ethical issues from the perspective of Swedish healthcare professionals.
  • To assess perceptions of research ethics competence in pediatric cancer research recruitment.

Main Methods:

  • Qualitative study utilizing semi-structured interviews with key informants.
  • Involved seven physicians and ten nurses.
  • Data analyzed using inductive qualitative content analysis.

Main Results:

  • Ethical challenges in recruitment primarily involved relationship building, trust, information provision, acknowledging vulnerability, and balancing roles.
  • Interpersonal and communication skills were highlighted as crucial for ethical competence.
  • Respondents emphasized the importance of ethical competence in recruitment.

Conclusions:

  • Recruitment of children with cancer is a relational process emphasizing trust and vulnerability.
  • Meeting informational needs is critical alongside relationship building.
  • Enhanced research ethics competence is essential to safeguard the rights and interests of children with cancer in research.
Abstract

Keywords:
AssentEthical challengesEthicsHealthcare professionalsInformed consentPaediatric oncologyQualitative researchResearch recruitmentShared decision-making

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