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Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
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Psychosocial Measures and Outcomes Among Caregivers of Children With Tracheostomies: A Systematic Review

Darlene E Acorda1, Jennifer N Brown1, Elton M Lambert1,2

  • 1Department of Nursing, Texas Children's Hospital, Texas, Houston, USA.

Otolaryngology--Head and Neck Surgery : Official Journal of American Academy of Otolaryngology-Head and Neck Surgery
|March 20, 2023
PubMed

Insights

Parents of children with tracheostomies experience significant psychosocial challenges, including lower quality of life and increased stress. More validated tools are needed to assess these long-term impacts on family caregivers.

Area of Science:

  • Pediatric Healthcare
  • Caregiver Well-being
  • Psychosocial Outcomes

Background:

  • Children with tracheostomies require extensive home care, significantly impacting parental roles and quality of life.
  • Caregiver burden in this population is substantial, affecting family dynamics and individual coping mechanisms.

Approach:

  • A systematic review of Medline, CINAHL, and EMBASE was conducted.
  • 1286 records were screened, identifying 12 studies on parental psychosocial outcomes.
  • Fourteen instruments for measuring caregiver psychosocial outcomes were identified.

Key Points:

  • Caregivers of tracheostomy-dependent children reported lower quality of life compared to other chronic caregiver groups.
  • High levels of stress, coping difficulties, decision regret, and conflict were prevalent.
  • A significant impact on caregiver psychosocial well-being was observed.

Conclusions:

  • Few studies utilized validated quantitative measures for this specific caregiver population.
  • There is a critical need for longitudinal studies using validated tools to understand long-term impacts.
  • Further research is essential to develop effective support strategies for these families.
Abstract

Keywords:
caregiverinstrumentpediatricpsychosocial outcomessystematic reviewtracheostomy

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