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Being, Knowing, and Doing: Importing Theoretical Toolboxes for Autism Studies.
Hanna Bertilsdotter Rosqvist1, Monique Botha2, Kristien Hens3
1School of Social Sciences, Södertörn University, Huddinge, Sweden.
This article proposes importing external theories to foster autistic-led autism research, emphasizing collaboration and ethical practices. It advocates for a neurodiverse approach, valuing autistic experiences in developing new theories and methodologies.
Area of Science:
- Autism Studies
- Social Sciences
- Philosophy of Science
Background:
- Current autism research often lacks theories grounded in autistic lived experiences.
- There's a need to integrate external theoretical frameworks to enrich autism studies.
- Autistic voices and perspectives are crucial for developing authentic and ethical research.
Purpose of the Study:
- To explore the application of critical realism, standpoint theory, and neurocosmopolitics in autism research.
- To support the development of new, autistic-led theories based on embodied experiences.
- To advocate for a paradigm shift towards neurodiverse collaboration in autism studies.
Main Methods:
- Theoretical analysis and synthesis of concepts from critical realism, standpoint theory, and neurocosmopolitics.
- Autoethnographic accounts and shared discourse from autistic researchers.
- Integration of research accounts and existing theories within autism studies.
Main Results:
- Demonstration of how critical realism can inform understanding of autistic 'being'.
- Application of standpoint theory to enhance understanding of autistic 'knowing'.
- Exploration of neurocosmopolitics and epistemic justice in autistic 'doing' and research practices.
Conclusions:
- An epistemic shift towards neurodiverse collaboration is proposed for more ethical and effective autism research.
- Non-autistic researchers are invited to collaborate 'with' autistic individuals, not 'on' them.
- Challenging existing structures, poor theory, and methodology is essential for progress in autism studies.
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