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Development of the stroke patient concerns inventory: A modified Delphi study.

Brigit M Chesworth1, Kulsum Patel2, Judith Redfern2

  • 1Public Health, St Helen and Knowsley Teaching Hospitals NHS Trust, United Kingdom.

Journal of Stroke and Cerebrovascular Diseases : the Official Journal of National Stroke Association
|March 23, 2023
PubMed
Summary

A new Stroke Patient Concerns Inventory (PCI) was developed to address unmet needs of stroke survivors. This tool, based on patient concerns and expert input, includes 53 items focusing on recovery and well-being.

Keywords:
Patient concerns inventoryPatient-centred careQuality of lifeStrokeUnmet need

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Health Psychology

Background:

  • Stroke survivors frequently experience persistent physical, psychological, and social challenges.
  • Patient Concerns Inventories (PCIs) are established tools for assessing patient concerns in various health conditions.
  • A specific PCI for stroke care was lacking.

Purpose of the Study:

  • To develop a comprehensive Patient Concerns Inventory (PCI) tailored for individuals recovering from stroke.
  • To ensure the tool addresses the multifaceted concerns of stroke survivors.

Main Methods:

  • A modified Delphi study design was employed, involving academic and healthcare professionals with stroke care expertise.
  • Initial items were generated from existing literature and expert discussions (Nominal Group Technique).
  • Iterative feedback and ranking by 38 experts refined the draft inventory through multiple rounds until consensus.

Main Results:

  • 64 potential items were initially generated, reduced to a final draft of 53 items.
  • The highest-ranked concerns included 'Risk of another stroke', 'Walking', and 'Recovery'.
  • Expert consensus was achieved after three rounds of feedback and amendments.

Conclusions:

  • A Stroke Patient Concerns Inventory (PCI) has been successfully developed.
  • The tool incorporates patient-reported concerns and expert professional input.
  • Further validation through pilot studies is planned to assess acceptability and usability.