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A Shared Decision-Making Process Utilizing a Decision Coach in Pediatric Epilepsy Surgery.

Michelle Kregel1, Natalie Evans2, Bonnie Wooten3

  • 1Children's Hospital, London Health Sciences, London, Ontario, Canada; Lawson Health Research Institute, London, Ontario, Canada.

Pediatric Neurology
|March 25, 2023
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Summary
This summary is machine-generated.

Shared decision-making (SDM) with a decision coach improved readiness for pediatric epilepsy surgery. This process reduced decisional conflict and enhanced family preparedness for surgical candidacy evaluation.

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Area of Science:

  • Pediatric Neurology
  • Surgical Decision-Making
  • Health Psychology

Background:

  • Epilepsy surgery candidacy evaluation is a stressful, lengthy process for families.
  • Limited information exists on how families navigate this challenging decision-making period.
  • Difficult decisions can increase decisional conflict for children and their families.

Purpose of the Study:

  • To evaluate the impact of shared decision-making (SDM) on families undergoing epilepsy surgery evaluation.
  • To assess the effectiveness of a decision coach in supporting families through the surgical candidacy process.
  • To reduce decisional conflict and improve preparedness for surgical decisions in pediatric epilepsy.

Main Methods:

  • Implemented a shared decision-making (SDM) process using an unbiased decision coach.
  • Provided families with evidence-based information and support tools tailored to their values.
  • Offered decision coach consultations to families of children with epilepsy evaluated for surgery.

Main Results:

  • 90% of families accepted a decision coach consultation.
  • 78% of families felt ready for surgery post-consultation; 22% desired more information.
  • Significant improvements in decisional conflict, uncertainty, and preparedness were observed.

Conclusions:

  • The SDM process, with an impartial decision coach, enhances knowledge of risks, benefits, and treatment options.
  • Individualized education and SDM support improve parental decision conflict and satisfaction.
  • This approach aids families in making informed choices regarding epilepsy surgery.