Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Surviving Severe Acute Brain injury: Care trajectories and missed opportunities.

medRxiv : the preprint server for health sciences·2026
Same author

Much Ado About Timing-Are There Patient-Centered Benefits of Early Tracheostomy After Traumatic Brain Injury?

Critical care medicine·2026
Same author

Longitudinal Transdisciplinary Neuropalliative care Support (LOTUS) Study - a conceptual framework and fidelity assessments.

medRxiv : the preprint server for health sciences·2026
Same author

Communicating with Families after Severe Acute Brain Injury.

Neurocritical care·2026
Same author

Guidelines for Neuroprognostication in Critically ill Adults with Acute Ischemic Stroke.

Neurocritical care·2026
Same author

Neurologic Complications of Drug and Alcohol Use.

Continuum (Minneapolis, Minn.)·2026

Related Experiment Video

Updated: Aug 5, 2025

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients
11:05

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients

Published on: February 6, 2021

15.0K

Do They Have a Choice? Surrogate Decision-Making After Severe Acute Brain Injury.

Adeline L Goss1, Rachel Rutz Voumard2,3, Ruth A Engelberg4,5

  • 1Division of Neurology, Department of Internal Medicine, Highland Hospital, Oakland, CA.

Critical Care Medicine
|March 28, 2023
PubMed
Summary
This summary is machine-generated.

Surrogate decision-makers for severe acute brain injury (SABI) patients often struggle with prognostic uncertainty. Tailoring communication strategies to how surrogates perceive their decision-making role is crucial for effective support.

More Related Videos

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.8K
Controlled Cortical Impact Model of Mouse Brain Injury with Therapeutic Transplantation of Human Induced Pluripotent Stem Cell-Derived Neural Cells
09:29

Controlled Cortical Impact Model of Mouse Brain Injury with Therapeutic Transplantation of Human Induced Pluripotent Stem Cell-Derived Neural Cells

Published on: July 10, 2019

10.9K

Related Experiment Videos

Last Updated: Aug 5, 2025

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients
11:05

SECONDs Administration Guidelines: A Fast Tool to Assess Consciousness in Brain-injured Patients

Published on: February 6, 2021

15.0K
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
14:32

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care

Published on: February 16, 2011

23.8K
Controlled Cortical Impact Model of Mouse Brain Injury with Therapeutic Transplantation of Human Induced Pluripotent Stem Cell-Derived Neural Cells
09:29

Controlled Cortical Impact Model of Mouse Brain Injury with Therapeutic Transplantation of Human Induced Pluripotent Stem Cell-Derived Neural Cells

Published on: July 10, 2019

10.9K

Area of Science:

  • Neuroscience
  • Medical Ethics
  • Health Communication

Background:

  • Severe acute brain injury (SABI) presents significant challenges for surrogate decision-makers due to prognostic uncertainty.
  • Current evidence-based strategies for communicating uncertainty and supporting decision-making in SABI are lacking.
  • Understanding surrogate experiences is vital for improving patient and family support and clinician-surrogate communication.

Purpose of the Study:

  • To explore surrogate decision-makers' experiences and needs during the active decision-making period in SABI.
  • To inform the development of interventions that support SABI patients and families.
  • To enhance communication between clinicians and surrogates.

Main Methods:

  • A qualitative study employing constructivist grounded theory.
  • Semistructured interviews were conducted with 22 surrogates for 19 patients hospitalized with SABI.
  • Data analysis involved iterative coding, reflexive memos, and group discussions.

Main Results:

  • Two distinct surrogate perspectives on decision-making emerged: active agency versus a passive role.
  • Prognostic uncertainty was a universal challenge, managed differently by surrogates based on their perspective.
  • Only surrogates with a sense of agency found time-limited trials helpful.

Conclusions:

  • Not all individuals in the role of surrogate decision-maker perceive themselves as actively making decisions.
  • Prognostic uncertainty is a significant struggle for nearly all surrogates in SABI.
  • Longitudinal communication strategies addressing surrogates' decision-making perspectives are needed.