Norwegian paediatric habilitation centres judge their own competence on cerebral visual impairment as limited

Pamela Friede1, Sandra Julsen Hollung2,3, Torstein Vik3

  • 1Department of Education, University of Agder, Kristiansand, Norway.

Insights

Cerebral visual impairment (CVI) is often overlooked in children with neurodevelopmental disorders. Norwegian habilitation centres need better CVI knowledge and assessment to address these challenges.

Area of Science:

  • Pediatric neurology
  • Developmental pediatrics
  • Ophthalmology

Background:

  • Cerebral visual impairment (CVI) is a common functional impairment in children with neurodevelopmental disorders.
  • CVI presents significant communicative, social, and academic challenges for affected children.
  • Paediatric habilitation centres in Norway are key facilities for assessing children with neurodevelopmental disorders.

Purpose of the Study:

  • To investigate the identification of CVI in Norwegian paediatric habilitation centres.
  • To assess the competence of these centres in evaluating CVI.
  • To determine the reported prevalence of CVI among children with cerebral palsy.

Main Methods:

  • An electronic questionnaire was distributed to leaders of all 19 Norwegian paediatric habilitation centres.
  • Quantitative and qualitative analyses were performed on the questionnaire responses.
  • Register-based data were utilized to estimate the prevalence of CVI in children with cerebral palsy.

Main Results:

  • Only 3 out of 17 responding centres felt they had sufficient CVI competence.
  • Systematic screening for CVI was not employed by any centre, with 11 reporting inadequate assessment.
  • The prevalence of CVI among children with cerebral palsy was found to be 8%, with CVI status unknown in 33%.

Conclusions:

  • There is a clear need for enhanced CVI knowledge and improved assessment strategies at Norwegian paediatric habilitation centres.
  • CVI is frequently overlooked in children diagnosed with neurodevelopmental disorders.
  • Improved identification and assessment are crucial for supporting children with CVI.
Abstract

Related Concept Videos