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Optimizing transition from pediatric to adult care in short bowel syndrome and intestinal failure

Sivan Kinberg1,2, Tanvi Verma1,2, Deeksha Kaura2

  • 1Pediatric Intestinal Rehabilitation Center (PIRC), Columbia University Irving Medical Center, New York, New York, USA.

JPEN. Journal of Parenteral and Enteral Nutrition
|April 2, 2023
PubMed

Insights

Children with short bowel syndrome (SBS) and intestinal failure (IF) require structured healthcare transition (HCT) programs. These programs empower young adults for lifelong, high-quality care management.

Area of Science:

  • Pediatric Gastroenterology
  • Adolescent Medicine
  • Healthcare Management

Background:

  • Increasing survival rates for pediatric short bowel syndrome (SBS) and intestinal failure (IF) necessitate a focus on long-term outcomes.
  • Healthcare transition (HCT) is crucial for adolescents and young adults with SBS/IF moving from pediatric to adult care.
  • Effective HCT requires disease education, empowerment, and support for patients and awareness among providers.

Purpose of the Study:

  • To review literature on HCT in chronic pediatric illnesses.
  • To discuss specific barriers to HCT in SBS/IF.
  • To identify key components and recommend strategies for successful SBS/IF HCT.

Main Methods:

  • Literature review of healthcare transition in pediatric chronic illnesses.
  • Analysis of barriers and facilitators for HCT in SBS/IF.
  • Synthesis of recommendations for structured HCT programs.

Main Results:

  • Identified challenges and barriers specific to HCT for SBS/IF patients.
  • Outlined essential elements for a successful transition process.
  • Highlighted the need for provider awareness and patient empowerment.

Conclusions:

  • Structured, multicomponent HCT programs are essential for SBS/IF patients.
  • Standardizing HCT ensures uninterrupted, high-quality care throughout the lifespan.
  • Proactive HCT planning improves long-term outcomes for individuals with SBS/IF.

Keywords:
adolescenthealthcare transitionintestinal failureparenteral nutritionpediatricsself-managementshort bowel syndromeyoung adult

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