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Value of Including the Children's Experience for Improving Their Rights During Hospitalization: Protocol for the

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Summary

This study introduces the VoiCEs project, developing a systematic pediatric patient-reported experience measures (PREMs) observatory across four European hospitals. The goal is to improve pediatric healthcare by collecting and analyzing children

Keywords:
PREMadolescentschildrencoassessmentcoproductionhealth care serviceshospitalizationpatient experiencepatient-reported experiencepediatric patients

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Area of Science:

  • Healthcare quality improvement
  • Patient experience research
  • Pediatric health services

Background:

  • User feedback is crucial for service improvement, especially for vulnerable populations like pediatric patients.
  • Systematically collecting and utilizing pediatric patient experiences during hospitalization presents significant challenges.
  • Existing literature highlights limited efforts in leveraging patient feedback for quality enhancement in pediatric care.

Purpose of the Study:

  • To describe the research protocol for developing and implementing a systematic pediatric patient-reported experience measures (PREMs) observatory.
  • To establish a shared platform for four European children's hospitals to collect and analyze pediatric patient experiences.
  • To enhance the understanding and utilization of children's voices in hospital quality improvement initiatives.

Main Methods:

  • Employing a participatory action research approach with mixed qualitative and quantitative methods.
  • Conducting a literature review, analyzing past PREMs experiences, and utilizing a Delphi process.
  • Engaging children and caregivers through focus groups/interviews and workshops, alongside an observational survey.

Main Results:

  • Gaining deeper knowledge of methodologies for collecting pediatric patient feedback.
  • Achieving consensus on a standard set of measures for evaluating hospitalization from the patient's perspective.
  • Implementing a European observatory for pediatric PREMs and enabling comparative reporting of patient experiences.

Conclusions:

  • The VoiCEs project addresses the need for continuous and systematic collection of pediatric PREMs.
  • It aims to create an innovative international observatory for pediatric patient feedback.
  • The project will provide actionable data for benchmarking and improving pediatric healthcare services.