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Caroline Favron-Godbout, Eric Racine

    Journal International De Bioethique Et D'Ethique Des Sciences
    |April 4, 2023
    PubMed
    Summary
    This summary is machine-generated.

    Medical assistance in dying (MAiD) for amyotrophic lateral sclerosis (ALS) presents moral challenges. Widening MAiD eligibility may partially address issues, particularly concerning the choice of how to die, but not all ethical concerns.

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    Area of Science:

    • Neuroscience
    • Medical Ethics
    • Palliative Care

    Background:

    • Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease.
    • Medical assistance in dying (MAiD) is a consideration for some ALS patients.
    • Existing MAiD eligibility criteria may not fully address ethical concerns.

    Approach:

    • Critical literature review of ethics, MAiD, and ALS.
    • Searched MEDLINE, EMBASE, CINAHL, and Web of Science databases (N=41).
    • Thematic content analysis to identify moral issues.

    Key Points:

    • Moral issues arise from the disease experience, choice of death, and MAiD implementation.
    • Stakeholder perspectives differ, leading to disagreements but also commonalities.
    • Widening MAiD eligibility primarily addresses issues related to the choice of how to die.

    Conclusions:

    • Widening MAiD eligibility offers a partial solution to ethical dilemmas in ALS.
    • Moral issues persist across disease experience and MAiD implementation.
    • Understanding diverse stakeholder perspectives is crucial for ethical considerations.