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Updated: Aug 4, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
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Parent-identified barriers to accessing exposure therapy: A qualitative study using process mapping.

Hannah E Frank1,2, Grace Cain1,2, Jennifer Freeman1,2

  • 1The Warren Alpert Medical School of Brown University, Providence, RI, United States.

Frontiers in Psychiatry
|April 6, 2023
PubMed
Summary
This summary is machine-generated.

Parents face significant challenges finding exposure therapy for youth anxiety and obsessive-compulsive disorder (OCD), often experiencing guilt and frustration due to systemic barriers. Improving access requires addressing these parental burdens and streamlining the treatment-seeking process.

Keywords:
anxietydisseminationexposure therapyobsessive-compulsive disorderparentsqualitativetreatment access

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Area of Science:

  • Child and Adolescent Psychiatry
  • Mental Health Services Research
  • Behavioral Therapy

Background:

  • Youth with anxiety and obsessive-compulsive disorder (OCD) have limited access to exposure therapy, a key evidence-based treatment.
  • Barriers such as long waitlists, provider shortages, and logistical issues hinder treatment accessibility.
  • No prior studies have explored parents' experiences in navigating the process of finding exposure therapists for their children.

Purpose of the Study:

  • To investigate and understand the step-by-step process parents undertake when seeking exposure therapy for their children with anxiety and/or OCD.
  • To identify parental perspectives on the challenges and barriers encountered during the treatment-seeking journey.

Main Methods:

  • Qualitative study involving 23 parents of children who received exposure therapy for anxiety and/or OCD.
  • Data collected through questionnaires and online focus groups.
  • Process maps were co-created with parents and analyzed for common themes.

Main Results:

  • Parents described a "search-outreach" loop, repeatedly contacting therapists but facing obstacles like cost, waitlists, and travel.
  • Many parents were unaware of exposure therapy and felt guilt over not finding suitable providers.
  • Navigating the mental health system was difficult, with some families taking years to find an exposure therapist.

Conclusions:

  • Parents bear a substantial burden in finding mental health treatment, leading to isolation and guilt.
  • Future research should focus on parent support, improved care coordination, and streamlined referral processes.
  • Addressing systemic barriers is crucial to enhance access to exposure therapy for youth with anxiety and OCD.