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Developing a Digital Medication Adherence Intervention for and With Patients With Asthma and Low Health Literacy:
Jasper S Faber1, Charlotte C Poot2,3, Tessa Dekkers4
1Department of Human-Centered Design, Faculty of Industrial Design Engineering, Delft University of Technology, Delft, Netherlands.
Participatory design effectively engages people with low health literacy (LHL) in developing eHealth interventions. Tailored activities ensure participants feel understood, leading to better-suited digital health tools for diverse populations.
Area of Science:
- Digital Health
- Human-Computer Interaction
- Health Literacy
Background:
- eHealth interventions often fail to meet the needs of individuals with low health literacy (LHL).
- A one-size-fits-all approach by designers neglects the specific requirements of disadvantaged groups.
- Participatory design holds promise for developing tailored interventions, but practical insights for engaging LHL populations are limited.
Purpose of the Study:
- To demonstrate participatory design activities tailored for people with LHL within an eHealth design process.
- To explore how these activities were integrated into the design of a smart asthma inhaler.
- To provide reflections and implications for designers engaging LHL individuals in future projects.
Main Methods:
- Utilized a design thinking framework (empathize, define, ideate, prototype, test) in two iteration cycles.
- Applied participatory design activities specifically chosen for LHL individuals: co-constructing stories, experience prototype exhibition, and video prototype evaluation.
- Focused on the design process of a smart asthma inhaler for individuals with asthma and LHL.
Main Results:
- Co-constructing stories enhanced understanding of medication adherence motivations, informing prototype development.
- Experience prototype exhibitions facilitated participant reactions and discussions on intervention use scenarios.
- Video prototype evaluation effectively communicated intervention goals and functionality, gathering relevant participant feedback.
Conclusions:
- A participatory design approach, with carefully selected activities, successfully engaged patients with asthma and LHL.
- This method fostered participant understanding and a sense of being heard.
- The study offers practical insights for designers aiming to involve LHL populations in eHealth development.
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