Autism services in low-resource areas

Amira T Masri1, Arwa K Nasir1, Aya G Irshaid1

  • 1From the division of Child Neurology (Masri, Irshaid A, Irshaid F, Alomari, Al-Qudah), Department of Pediatrics, Department of Biochemistry (Khatib), College of Medicine, University of Jordan, From the Department of Pediatrics (Nafi), Faculty of Medicine, Mutah University-Jordan, from the Department of Pediatrics (Almomani), Division of Child Psychiatry (Bashtawi), Neuroscience Department, Faculty of Medicine, Jordan University of Science and Technology, and from the Department of Pediatrics (Nasir), University of Nebraska Medical Center,Omaha, Nebraska, USA.

Insights

Most children with autism spectrum disorder (ASD) in Jordan face limited access to essential intervention services. Key barriers include high costs and transportation challenges, necessitating resource-aware future planning.

Area of Science:

  • Pediatric Neurology
  • Developmental Pediatrics
  • Public Health

Background:

  • Autism spectrum disorder (ASD) requires timely intervention services for optimal child development.
  • Access to specialized care for ASD varies significantly, particularly in low-resource settings.
  • Understanding service accessibility is crucial for developing effective support systems.

Purpose of the Study:

  • To investigate the accessibility of intervention services for children diagnosed with autism spectrum disorder (ASD) in Jordan.
  • To identify the types of services utilized and barriers encountered by families of children with ASD.

Main Methods:

  • A prospective cross-sectional survey was conducted with parents of 274 children with ASD (aged 2.5-17 years).
  • Data were collected from participants attending pediatric neurology clinics across three major Jordanian hospitals.
  • Information gathered focused on service utilization, age at first intervention, and perceived barriers to care.

Main Results:

  • 71.5% of children with ASD received rehabilitation services, with behavioral therapy being the most common (66.4%).
  • The average age for initiating services was 3.9 years, with speech and behavioral therapies receiving the most weekly hours.
  • Significant barriers included high costs (58%) and transportation difficulties (37.5%), with a preference for specialized autism centers.

Conclusions:

  • Children with ASD in Jordan experience restricted access to recommended intervention services.
  • Future intervention strategies must address the financial and logistical challenges faced by families in resource-limited regions.
  • Parental preference leans towards specialized autism centers rather than direct training for self-intervention.
Abstract

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