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Factors affecting well-being in brain tumor patients: An LMIC perspective
Nasim Zahid Shah1, Taleaa Masroor2, Nida Zahid2
1School of Nursing and Midwifery, Aga Khan University Hospital, Karachi, Pakistan.
This study explored the needs of brain tumor patients in a low- and middle-income country (LMIC). Findings highlight the importance of family support and spiritual connection, while also emphasizing the need for financial navigation strategies to improve quality of life.
Area of Science:
- Neuro-oncology
- Psychosocial Oncology
- Global Health
Background:
- Brain tumors present significant challenges to patient well-being and quality of life.
- Limited research exists on the specific needs and coping mechanisms of brain tumor patients in low- and middle-income countries (LMICs).
Purpose of the Study:
- To explore the unique needs and coping strategies of brain tumor patients in an LMIC setting.
- To identify factors influencing quality of life (QoL) and well-being from the patients' perspectives.
Main Methods:
- A qualitative, exploratory descriptive study design was employed.
- In-depth interviews were conducted with 250 brain tumor patients.
- Content analysis was used to identify major themes and sub-themes.
Main Results:
- Three key themes emerged: factors affecting survivors' lives, strategies to improve QoL, and coping tactics for healthy relationships.
- Family support and spiritual connection were crucial for mitigating psychosocial burdens.
- Financial concerns were pervasive and significantly impacted patients' well-being.
Conclusions:
- Addressing financial navigation is essential for improving the overall well-being of brain tumor patients in LMICs.
- Strengthening patient-physician relationships and reinforcing positive coping strategies are vital.
- Cultural-specific support systems, including family and spiritual connections, play a significant role in patient care.
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