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Person-Centered Navigator Program for People with Parkinson's Disease: A Pilot Study
JuHee Lee1, YonJi Kim2, Yielin Kim2
1Mo-Im Kim Nursing Research Institute, Yonsei Evidence Based Nursing Centre of Korea: A Joanna Briggs Institute of Excellence, College of Nursing, Yonsei University, Seoul, South Korea.
This study developed and tested a Parkinson's disease (PD) navigator program in Korea, showing improved social function and high participant satisfaction. The program offers a promising, person-centered approach to lifelong PD care.
Area of Science:
- Neurology
- Healthcare Management
- Patient Support Programs
Background:
- Parkinson's disease (PD) is a chronic condition requiring lifelong, comprehensive care.
- Existing patient navigation programs are scarce for PD and predominantly focus on oncology in Western contexts.
- There is a need for culturally adapted, person-centered navigation programs for PD patients.
Purpose of the Study:
- To develop a person-centered navigator program tailored for Parkinson's disease (PD) patients.
- To evaluate the preliminary outcomes and feasibility of this navigator program within the Korean healthcare setting.
- To address the gap in PD-specific patient navigation resources.
Main Methods:
- The program was developed using the Analysis, Design, Development, Implementation, and Evaluation (ADDIE) model and a professional navigation framework.
- A cohort of 28 participants engaged in an 8-week navigator program.
- Outcomes were assessed at baseline and 12 weeks post-intervention.
Main Results:
- The program demonstrated a high retention rate of 82% among participants.
- Significant improvements in social function were observed 12 weeks after the baseline assessment.
- Participants reported high levels of satisfaction, indicating good program acceptance.
Conclusions:
- A systematic approach successfully developed a PD-specific navigator program adapted to the Korean context.
- The program shows preliminary feasibility and positive outcomes, particularly in enhancing social function.
- Future iterations should emphasize personal and participatory elements for evolving healthcare interventions in PD management.
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