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Exploring the Patient Perspective of Bone Sarcoma Survivors Who Have Undergone Particle Radiotherapy Abroad
Lena Fauske1,2, Nina L Jebsen3,4, Hilde Bondevik2
1Department of Oncology, Norwegian Radium Hospital, Oslo University Hospital, Oslo, Norway; lena.fauske@ous-hf.no.
Anticancer Research
|April 25, 2023
Summary
Particle therapy offers positive patient experiences but requires better preparation and follow-up for bone sarcoma patients. Understanding late effects and challenges is crucial for improving quality of life and treatment compliance.
Area of Science:
- Oncology
- Patient-Reported Outcomes
- Particle Therapy
Background:
- Limited data exists on health-related quality of life and late effects in sarcoma patients undergoing particle therapy.
- Particle therapy is a developing, centralized treatment modality requiring optimized patient support.
- Understanding patient experiences is vital for treatment compliance and follow-up care.
Purpose of the Study:
- To explore bone sarcoma patients' experiences with particle therapy, focusing on quality of life and late effects.
- To identify key challenges and needs of patients undergoing particle therapy abroad.
- To inform improvements in patient preparation and follow-up care.
Main Methods:
- Qualitative, explorative study using a phenomenological and hermeneutical approach.
- Semi-structured interviews conducted with 12 bone sarcoma patients treated with particle therapy abroad.
- Thematic analysis used for data interpretation.
Main Results:
- Patients desired more information regarding treatment procedures, acute side effects, and late complications.
- Most patients reported positive treatment and travel experiences, though some faced challenges with late effects.
- Emergent themes included the importance of preparation, experiences during treatment and travel, and living with health issues.
Conclusions:
- Oncologists must possess comprehensive knowledge of particle therapy, prognoses, and side effects for informed patient referral.
- Study findings can enhance patient preparation, compliance, and understanding of individual challenges.
- Improved follow-up care and reduced patient stress can lead to better quality of life for bone sarcoma patients.
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