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How to set up a functional neurological disorder education group
Biba Stanton1,2, Tim Segal3, Abigail Bradley-Westguard4
1Neuropsychiatry, South London and Maudsley NHS Trust, London, UK biba.stanton@nhs.net.
Setting up functional neurological disorder (FND) education groups improves patient understanding and reduces stigma. These multidisciplinary groups offer vital support and self-management advice often lacking for FND patients.
Area of Science:
- Neurology
- Psychiatry
- Patient Education
Background:
- Functional neurological disorder (FND) presents diagnostic and explanatory challenges for clinicians.
- Patients with FND often lack the postdiagnostic support available for other chronic neurological conditions.
Purpose of the Study:
- To share experiences and provide a guide for establishing FND education groups.
- To outline effective content, delivery methods, and potential challenges in running these groups.
Main Methods:
- Describing the setup and implementation of a multidisciplinary FND education group.
- Incorporating practical aspects and strategies to avoid common pitfalls.
Main Results:
- Group education sessions enhance patient and caregiver understanding of FND.
- These sessions can effectively reduce stigma associated with the diagnosis.
- Participants receive valuable self-management advice.
Conclusions:
- Multidisciplinary FND education groups are a beneficial model for patient support.
- Involving service users in group delivery is recommended.
- Such groups improve the overall care and management of functional neurological disorder.
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