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How does community engagement evolve in different compassionate community contexts? A longitudinal comparative
Émilie Lessard1,2,3, Isabelle Marcoux3,4, Serge Daneault3,5
1Centre de Recherche du Centre Hospitalier de l'Université de Montréal (CRCHUM), 850 rue St-Denis, Montréal, QC H2X 0A9, Canada.
Palliative Care and Social Practice
|April 28, 2023
Summary
This study explores community engagement in compassionate communities, finding that local context significantly influences engagement processes and outcomes for end-of-life care. Understanding these dynamics is key to sustaining these initiatives.
Area of Science:
- Public Health
- Community Health
- Palliative Care Research
Background:
- Compassionate communities aim to improve palliative care by addressing gaps in end-of-life services.
- Community engagement is central to compassionate communities but lacks empirical study.
- Existing research has not fully explored how community engagement evolves within these initiatives.
Purpose of the Study:
- To describe community engagement processes in two compassionate communities projects.
- To understand how contextual factors influence community engagement over time.
- To assess the impact of community engagement on outcomes and sustainability.
Main Methods:
- Employed a community-based participatory action-research approach.
- Utilized a longitudinal, comparative ethnographic design.
- Collected data through focus groups, interviews, observations, document review, and questionnaires.
Main Results:
- Detailed the evolution of community engagement within diverse compassionate communities contexts.
- Identified key contextual factors influencing engagement processes.
- Assessed the contribution of engagement to proximal outcomes and sustainability.
Conclusions:
- Understanding community engagement is crucial for the success and sustainability of compassionate communities.
- Local context plays a vital role in shaping engagement and outcomes.
- Further research can refine frameworks for evaluating compassionate communities.
Keywords:
community engagementcompassionate communitiesethnographyimplementationpalliative and end-of-life carepublic health palliative careresearch protocolMore Related Videos
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