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Perspectives on care coordination for youth with TBI: Moving forward to provide better care
Jennifer P Lundine1,2, Erika Hagen1, Susan Davies3
1Department of Speech and Hearing Science, The Ohio State University, Columbus, OH, USA.
Insights
Effective care coordination for children with traumatic brain injury (TBI) faces challenges. Improving knowledge, collaboration, and policy frameworks is crucial for better outcomes in pediatric TBI care.
Area of Science:
- Pediatric healthcare
- Neuroscience
- Public health
Background:
- Care coordination is vital for optimizing outcomes in children with traumatic brain injury (TBI).
- Numerous obstacles hinder effective care coordination for pediatric TBI.
- Understanding these barriers is key to improving support systems.
Purpose of the Study:
- Identify barriers and facilitators to care coordination for young people with TBI.
- Gather perspectives from medical providers, educators, and caregivers.
- Inform improvements in pediatric TBI care systems.
Main Methods:
- Conducted semi-structured interviews with 21 care providers.
- Gathered insights on current care coordination systems for youth with TBI.
- Utilized reflexive thematic analysis to identify key themes.
Main Results:
- Identified three major themes: knowledge gaps, poor inter-system collaboration/communication, and inadequate policy/funding.
- Participants shared experiences and suggestions for improvement across these themes.
- Gaps in knowledge, communication, and policy significantly impact pediatric TBI care.
Conclusions:
- A structured, consistent, and coordinated system is critical for pediatric TBI outcomes.
- Enhanced collaboration between healthcare and schools, alongside provider education, is essential.
- Policy and funding initiatives are needed for equitable access to care and educational support.
Background:
Care coordination aligns services and optimizes outcomes for children with traumatic brain injury (TBI), yet numerous obstacles can impede effective care coordination following a TBI.
Objective:
The goal of this work is to identify barriers and facilitators to care coordination from the perspective of individuals who care for young people impacted by TBI (e.g., medical providers, educators, caregivers).
Methods:
Twenty-one care providers participated in semi-structured interviews to gather their perspectives on systems of care coordination for youth with TBI and potential areas for improvement. Using reflexive thematic analysis, researchers identified key themes across interviews.
Results:
Three themes were identified: 1) gaps in knowledge; 2) poor collaboration and communication between systems and care providers; and 3) inadequate legislative and policy frameworks that fund and support pediatric TBI. Across themes, participants shared their experiences and ideas to improve each of these areas.
Conclusion:
A structured, consistent, and coordinated system of care for pediatric TBI is critical to ensure optimal outcomes. Protocols that emphasize intentional and productive collaboration between healthcare settings and schools and education for all care providers are cornerstones in improving outcomes for children. Top-down action that develops policy and funding initiatives is needed to ensure equitable, consistent access to appropriate healthcare and educational supports.
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