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Implantation and Monitoring by PET/CT of an Orthotopic Model of Human Pleural Mesothelioma in Athymic Mice
Published on: December 21, 2019
Mesothelioma palliative care needs: supporting patients and families with new research-based resources
Sarah Hargreaves1, Clare Gardiner1, Angela Tod1
1Mesothelioma UK Research Centre, Health Sciences School, University of Sheffield, Sheffield, South Yorkshire, UK.
Background:
Mesothelioma is a rare cancer without cure. Clinical guidelines recommend the timely provision of palliative/supportive care; however, a new study identified barriers to achieving this ambition.
Objective:
The study aimed to explore palliative care needs and the role of Mesothelioma Clinical Nurse Specialists (MCNSs); and to develop resources to address study findings.
Methods:
The mixed-methods study included a literature review, focus groups, interviews and surveys.
Results:
The study highlighted the important role of the MCNSs in palliative care and the need to: address disjointed care; improve support for families; and explain the benefits of palliative care for patients/families. A co-production approach developed an animation for patients/families to demystify palliative care and explain the benefits of early-stage engagement; and an infographic targeted at community and primary care professionals. Recommendations for community nursing practice are described.
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