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Paediatric palliative care for the generalist.

Julia F Ambler1, Christoffel H Bell

  • 1Umduduzi - Hospice Care for Children, Durban, South Africa; and, Department of Paediatrics, Faculty of Health Sciences, University of KwaZulu-Natal, Durban, South Africa; and, Department of Family Medicine, Faculty of Health Sciences, University of KwaZulu-Natal, Durban. julia@umduduzi.co.za.

South African Family Practice : Official Journal of the South African Academy of Family Practice/Primary Care
|May 3, 2023
PubMed
Summary

Palliative care, crucial for relieving suffering in serious illnesses, is often misunderstood and under-trained. This essential holistic care should start at diagnosis, not just end-of-life, for all patients.

Keywords:
disabilityhealth-related sufferingholistic carelife-limiting illnesspaediatricpaediatric palliative carephysicalpsychologicalsocialspiritual

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Area of Science:

  • Medical Specialties
  • Public Health

Background:

  • Palliative care is defined as active, holistic care for individuals of all ages experiencing serious health-related suffering.
  • Palliative care, particularly pediatric palliative care, is a neglected and misunderstood medical field in South Africa, with limited formal training for healthcare providers.
  • Misconceptions often limit palliative care to end-of-life situations, overlooking its broader application.

Purpose of the Study:

  • To raise awareness about the importance and scope of palliative care.
  • To demonstrate practical implementation strategies for palliative care across various healthcare settings.
  • To emphasize the need for early integration of holistic care from the point of serious illness diagnosis.

Main Methods:

  • Review of palliative care definitions and scope.
  • Analysis of current training and understanding of palliative care in South Africa.
  • Presentation of case studies illustrating practical palliative care implementation.

Main Results:

  • Palliative care is often narrowly understood as solely end-of-life care.
  • There is a significant gap in formal training and understanding among healthcare providers in South Africa.
  • Holistic care (physical, emotional, social, spiritual) is vital from the time of diagnosis for serious illnesses.

Conclusions:

  • Palliative care is essential for alleviating health-related suffering and should be integrated early in the course of serious illnesses.
  • Healthcare providers across all disciplines and levels of care require enhanced knowledge and skills in palliative care.
  • Practical implementation through case studies can improve understanding and application of palliative care principles.