"Press On, Continue On": Rural Parents' Experiences of Transitions Within Early Intervention

Area of Science:

• Family Studies
• Special Education
• Child Development

Background:

• Families of children with exceptionalities experience numerous transitions during early childhood.
• These transitions, often linked to early intervention or special education services, can be stressful.
• Understanding family experiences is vital for improving child and family well-being.

Purpose of the Study:

• To explore the transition experiences of parents with children with exceptionalities in a rural setting.
• To identify key themes and challenges faced by these families during transitions.
• To inform recommendations for enhanced family support services.

Main Methods:

• Qualitative study involving interviews with 28 parents in a rural state.
• Thematic analysis was used to analyze interview data.
• Focus on parents' lived experiences of transitions over time.

Main Results:

• Three primary themes emerged: "change is constant," "positive relationships support changing needs," and "parents need more support/information/access."
• Strong relationships and collaboration with providers were valued but often insufficient.
• Rurality presented unique challenges to accessing services and support.

Conclusions:

• Families need enhanced support, information, and access to services to navigate transitions effectively.
• Empowering families and building their efficacy through family-focused services is recommended.
• Addressing barriers to services, particularly in rural areas, is essential for family well-being.