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Implementing Home-Based Clinical Research for Caregivers and Persons with Stroke: Lessons Learned
Home Healthcare Now
|May 5, 2023
Summary
Conducting home-based stroke rehabilitation research requires careful planning. This study highlights challenges in recruitment, data collection, and adherence to therapies like constraint-induced movement therapy (CIMT) for improved upper extremity function.
Area of Science:
- Rehabilitation research
- Stroke recovery
- Home-based interventions
Background:
- Home-based research presents unique challenges for participants, methods, and researchers.
- Ensuring methodological rigor in home environments is crucial for study validity.
- Carepartner engagement is vital for effective home-based rehabilitation interventions.
Purpose of the Study:
- To describe challenges and lessons learned from a pilot randomized controlled trial of a web-based intervention for stroke survivors and their carepartners.
- To identify strategies for improving the planning and execution of future home-based rehabilitation research.
- To enhance carepartner engagement in home-based activities to improve upper extremity function post-stroke.
Main Methods:
- A two-group, randomized pilot study (n=32) of the CARE-CITE (Carepartner and Constraint-Induced Therapy) web-based intervention.
- Intervention focused on fostering carepartner engagement in home-based activities and adherence to constraint-induced movement therapy principles.
- Data collection and intervention delivery occurred within the participants' home settings.
Main Results:
- Key challenges included participant recruitment, home-based data collection, adherence to constraint-induced movement therapy (wearing a mitt), tracking practice time, and participant-driven goal setting.
- Other issues involved ensuring safety of practice activities and home visits, balancing autonomy support, addressing participant needs beyond the study scope, and ethical considerations for depressive symptoms.
- Successful implementation required strategies to support methodological rigor and facilitate carepartner involvement.
Conclusions:
- Home-based rehabilitation research, particularly interventions like CARE-CITE, faces multifaceted challenges.
- Addressing recruitment, adherence, safety, and ethical considerations is essential for successful home-based studies.
- Strategies for supporting carepartners and ensuring methodological rigor can facilitate effective home-based rehabilitation research for stroke survivors.
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