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Parental Experiences With Access to Care for Obstructive Sleep-Disordered Breathing: A Qualitative Study
Phayvanh P Pecha1, Walter Nicholas Jungbauer1, Kenneth J Ruggiero2
1Department of Otolaryngology-Head and Neck Surgery, Medical University of South Carolina, Charleston, South Carolina, USA.
Summary
Parental knowledge of sleep-disordered breathing (SDB) and primary care provider awareness improve access to care. However, referral difficulties and dismissive providers create barriers, impacting equitable SDB treatment for children.
Area of Science:
- Pediatrics
- Sleep Medicine
- Health Services Research
Background:
- Evidence-based guidelines exist for obstructive sleep-disordered breathing (SDB), yet treatment inequities persist.
- Qualitative research is needed to understand parental experiences with SDB care access.
Purpose of the Study:
- To examine parental facilitators and barriers to obstructive sleep-disordered breathing (SDB) treatment.
- To identify factors influencing SDB detection and specialty care access in children.
Main Methods:
- Conducted semistructured interviews with parents of children with SDB undergoing tonsillectomy.
- Utilized qualitative methods until thematic saturation, coding interviews with NVivo software.
Main Results:
- Parental knowledge and primary care provider (PCP) awareness facilitated SDB diagnosis (41%).
- Barriers included difficulty obtaining specialist referrals and dismissive providers (53%).
- Medicaid coverage was a facilitator (59%); racial bias and language barriers caused alienation (17.6%).
Conclusions:
- High clinician knowledge and perceived SDB importance facilitate treatment.
- Referral attainment is a significant barrier to specialty evaluation.
- Findings highlight modifiable areas for timely and equitable SDB care interventions.
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