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Updated: Jul 30, 2025

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Perspectives from diverse stakeholders in a youth community-based participatory research project
Olutobi Oridota1, Anuradha Shetty2, Cordelia R Elaiho3
1CUNY School of Medicine, USA.
Introduction:
TEEN HEED (Help Educate to Eliminate Diabetes) is a community-based youth participatory action research (YPAR) study in which prediabetic adolescents from a predominantly low-income, non-white neighborhood in New York City participated in a peer-led diabetes prevention intervention. The aim of the current analysis is to evaluate the TEEN HEED program through examination of multiple stakeholder perspectives to identify strengths and areas for improvement that may inform other YPAR projects.
Methods:
We conducted 44 individual in-depth interviews with representatives from six stakeholder groups (study participants, peer leaders, study interns and coordinators, and younger and older community action board members). Interviews were recorded, transcribed, and analyzed using thematic analysis to identify overarching themes.
Results:
Dominant themes identified were: 1) YPAR principles and engagement, 2) Youth engagement through peer education, 3) Challenges and motivations for research participation, 4) Study improvements and sustainability, and 5) Professional and personal impacts of the study.
Conclusions:
Emergent themes from this study provided insights on the value of youth participation in research and informed recommendations for future YPAR studies.
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