Web design software to record the characteristics of children with cleft palate/cleft lip

Soussan Irani1,2, Amirfahang Miresmaeili3, Hamed Shahidi Hamadani4

  • 1Department of Oral Pathology, Dental Research Centre, School of Dentistry, Hamadan University of Medical Sciences, Hamadan, Iran.

Insights

A new website was developed to register newborns with cleft lip (CL) and cleft palate (CP) in Iran. This tool aims to improve public health strategies for treating these common craniofacial birth defects.

Area of Science:

  • Craniofacial development
  • Birth defects research
  • Public health informatics

Background:

  • Cleft lip (CL) and cleft palate (CP) are prevalent craniofacial birth defects.
  • Environmental and genetic factors influence CL ± CP occurrence.
  • Prevalence of CL ± CP varies significantly across different populations.

Purpose of the Study:

  • To design and develop a dedicated website for registering newborns diagnosed with CL ± CP in Iran.
  • To create a centralized database for CL ± CP characteristics in the Iranian population.

Main Methods:

  • A website was specifically designed for the registration of children with CL ± CP.
  • Data from 31 children with CL ± CP were collected and analyzed to evaluate website accuracy.
  • The website's capability to generate reports in Excel format was utilized for data analysis.

Main Results:

  • The developed website successfully registered and stored characteristics of children with CL ± CP.
  • Data analysis confirmed the website's capability to manage and report patient information.
  • The system allows for the extraction of patient data in an accessible Excel format.

Conclusions:

  • A specialized website for registering Iranian newborns with CL ± CP is essential due to the condition's prevalence.
  • This registry aims to support public health authorities in enhancing treatment programs for affected children.
  • The website serves as a valuable tool for data collection and analysis to improve care for CL ± CP.
Abstract