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Attitudes toward the Care of Children with Cancer in Saudi: An Exploratory Survey
1King Abdullah International Medical Research Center (KAIMRC), King Saud Bin Abdulaziz University for Health Sciences, Riyadh 11481, Saudi Arabia.
Insights
Ethical challenges in pediatric cancer care are significant in Saudi Arabia. Healthcare professionals showed greater awareness of ethical considerations like consent and family values compared to other groups.
Area of Science:
- Pediatric Oncology
- Bioethics
- Healthcare Management
Background:
- Ethical challenges in pediatric cancer care are under-addressed in Arab countries.
- Despite advancements, children's rights awareness requires better integration into care.
- Pediatric cancer presents unique ethical considerations distinct from adult oncology.
Purpose of the Study:
- To investigate the ethical challenges in pediatric cancer care within Saudi Arabia.
- To assess awareness, knowledge, and practices regarding parent consent and child assent.
- To compare ethical perspectives among pediatricians, medical students, nurses, and parents.
Main Methods:
- A survey was conducted with 400 respondents at King Abdulaziz Medical City.
- Respondents included pediatricians, medical students, nurses, and parents of children with cancer.
- Data collected on awareness of care, knowledge, parent consent, and child assent.
Main Results:
- 89% recognized pediatric cancer as distinct from adult cancer.
- High agreement on the importance of understanding family values (88%) and parental consent (92.3%).
- Lower agreement on child assent (41.3%) and child refusal of treatment (24.3%).
Conclusions:
- Physicians and nurses demonstrated more positive ethical perspectives than other groups.
- Emphasizing family-centered care and informed consent is crucial.
- Further attention is needed to enhance child assent processes in pediatric cancer care.
Abstract:
The ethical challenges of pediatric cancer care across Arab countries are not well addressed, despite medical advancements and increased awareness of children's rights. The ethical challenges related to pediatric cancer in Saudi Arabia were investigated by surveying 400 respondents at King Abdulaziz Medical City in Riyadh, Jeddah, and Dammam, Saudi Arabia, from four groups: pediatricians, medical students, nurses, and parents of children with cancer. Respondents' characteristics were surveyed across three outcomes: awareness of care, knowledge, and parent consent/child assent, developed from a systematic review and a qualitative analysis. A majority of respondents (89.0%) considered pediatric cancer different from adult cancer. Families considered alternative treatment, according to 64.3% of respondents, while 88.0% emphasized understanding the family's needs and values. Furthermore, 95.8% of respondents believed physicians should offer time for pedagogy, 92.3% viewed parental consent as essential, and 94.5% thought that sufficient discussion about the plan and type of treatment should precede consent. However, child assent showed lower levels of agreement, with only 41.3% and 52.5% agreeing with getting child assent and having a discussion. Finally, 56% agreed that parents might refuse suggested treatment, while only 24.3% agreed that the child could refuse it. In all these ethical considerations, nurses and physicians showed significantly more positive results compared with other groups.
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