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Validation of the Pediatric Quality of Life Inventory 3.0 Cerebral Palsy Module (Parent Form) for use in Türkiye
Sehim Kutlay1, Birkan Sonel Tur1, Melek Sezgin2
1Department of Physical Medicine and Rehabilitation, Ankara Universityy Faculty of Medicine, Ankara, Türkiye.
Insights
The Turkish PedsQL 3.0 Cerebral Palsy module is a reliable and valid tool for assessing health-related quality of life in children with cerebral palsy (CP). This validated instrument can be used in clinical settings.
Area of Science:
- Pediatric Health
- Quality of Life Assessment
- Cerebral Palsy Research
Background:
- Assessing health-related quality of life (HRQoL) in children with cerebral palsy (CP) is crucial for effective clinical management.
- Validated instruments are needed to accurately measure HRQoL in this population.
- The Pediatric Quality of Life Inventory (PedsQL) 3.0 CP module is a potential tool for this purpose.
Purpose of the Study:
- To evaluate the reliability and validity of the Turkish version of the PedsQL 3.0 CP module (parent form).
- To determine if the Turkish PedsQL 3.0 CP module is suitable for use in clinical settings with children diagnosed with CP.
Main Methods:
- A validation study involving 511 children (212 with CP, 299 typically developing) was conducted.
- Reliability was assessed using internal consistency and person separation index (PSI).
- Internal construct validity was examined via Rasch analysis, and external construct validity through correlations with GMFCS and WeeFIM.
Main Results:
- The Turkish PedsQL 3.0 CP module demonstrated adequate reliability, with Cronbach's alphas ranging from 0.66 to 0.96 and PSI from 0.672 to 0.943.
- Rasch analysis confirmed good internal construct validity, with no differential item functioning.
- External construct validity was supported by moderate to high correlations with WeeFIM and GMFCS.
Conclusions:
- The Turkish version of the PedsQL 3.0 CP module is a reliable and valid instrument.
- The tool is appropriate for clinical use to assess the HRQoL of children with CP.
- This validated module aids in the comprehensive evaluation of children with cerebral palsy.
Objectives:
This study was planned to test the reliability and validity of the Turkish version of the Pediatric Quality of Life Inventory (PedsQL) 3.0 cerebral palsy (CP) module (parent form) in children with CP.
Patients And Methods:
In the validation study conducted between June 2007 and June 2009, 511 children (299 normal children, 212 children with CP) were assessed by the seven scales of PedsQL [daily activities (DA), school activities (SA), movement and balance (MB), pain and hurt (PH), fatigue (F), eating activities (EA), and speech and communication (SC)]. Reliability was tested by internal consistency and person separation index (PSI); internal construct validity by Rasch analysis and external construct validity by correlation with the Gross Motor Function Classification System (GMFCS) and Functional Independence Measure for Children (WeeFIM).
Results:
Only 13 children with CP completed the inventory by themselves and thus were excluded. Consequently, 199 children with CP (113 males, 86 females; mean age: 7.3±4.2 years; range, 2 to 18 years) and 299 normal children (169 males, 130 females; mean age: 9.4±4.0 years; range, 2 to 17 years) were included in the final analysis. Reliabilities of the seven scales of the PedsQL 3.0 CP module were adequate, with Cronbach's alphas between 0.66 and 0.96 and the PSI between 0.672 and 0.943 for the CP group. In Rasch analysis, for each scale, items showing disordered thresholds were rescored; then testlets were created to overcome local dependency. Internal construct validity of the unidimensional seven scales was good with the mean item fit of -0.107±1.149, 0.119±0.818, 0.232±1.069, -0.442±0.672, 0.221±0.554, -0.091±0.606, and -0.333±1.476 for DA, SA, MB, PH, F, EA, and SC, respectively. There was no differential item functioning. External construct validity of the instrument was confirmed by expected moderate to high correlations with WeeFIM and GMFCS (Spearman's r=0.35-0.89).
Conclusion:
Turkish version of the PedsQL 3.0 CP module is reliable, valid, and available for use in clinical setting to evaluate health-related quality of life of children with CP.
