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Designing a national pediatric critical care database: a Delphi consensus study.

Nadia Roumeliotis1, Joanne Ramil2, Daniel Garros3

  • 1Department of Pediatrics, Critical Care, CHU Sainte-Justine, University of Montreal, 3175 Chemin de la Cote-Sainte-Catherine, Montreal, QC, H3T 1C5, Canada. nadia.roumeliotis@gmail.com.

Canadian Journal of Anaesthesia = Journal Canadien D'Anesthesie
|May 22, 2023
PubMed
Summary

A national pediatric critical care database in Canada was developed using a Delphi consensus study. This process identified 72 core data elements for research and quality improvement in pediatric intensive care units (PICUs).

Keywords:
Delphi consensuscommon data elementsdatabasepediatric critical careregistryvariables

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Area of Science:

  • Pediatric Critical Care Medicine
  • Health Informatics
  • Data Standardization

Background:

  • Developing a national pediatric critical care database is crucial for improving care.
  • Standardized data elements are needed for research, benchmarking, and quality improvement.

Purpose of the Study:

  • To describe the systematic selection and consensus process for common data elements for a Canadian national pediatric critical care database.
  • To establish a standardized set of data for pediatric intensive care units (PICUs).

Main Methods:

  • A multicentre Delphi consensus study involving Canadian PICUs was conducted.
  • Expert panels of healthcare professionals, caregivers, and stakeholders participated in three survey rounds.
  • A baseline survey was developed from literature, existing databases, and expert knowledge.

Main Results:

  • 68 out of 86 invited participants (79%) engaged in the expert panel.
  • Three rounds of surveys achieved high response rates (81-91%).
  • 72 data elements across six domains were selected, focusing on clinical status and interventions; demographic variables like race and gender were included, but not minority status or ethnicity.

Conclusions:

  • A methodological framework was established for consensus-based data element selection for a national pediatric critical care database.
  • The selected core data elements will facilitate standardized data for research, benchmarking, and quality improvement in pediatric critical care.
  • Diverse stakeholder participation ensured comprehensive and relevant data element selection.