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Do nurses participate in end-of-life decision making?
Elham H Othman1, Ruqayya Zeilani2, Mohammad R AlOsta3
1Assistant professor, Applied Science Private University, Jordan.
Background:
To explore how Jordanian nurses participate in the end-of-life (EoL) decision-making process.
Methods:
Interviews with 10 patients and family caregivers, and focus group discussions with seven healthcare professionals (HCPs), were conducted. Interviews were audio-recorded, transcribed and analysed following inductive thematic analysis.
Findings:
The participants agreed that nurses are not fully engaged and did not have a direct role in the EoL decision-making process. However, the participants highlighted that 'nurses bridge the gaps in the decision-making process', where nurses act as mediators to facilitate the decision-making process. Lastly, nurses were viewed as 'nurturers and supporters during the journey of the patient's illness'; they were always available to answer their questions, offer help and advise when necessary during palliative referral and throughout the illness.
Conclusions:
Although nurses did not directly participate in EoL decisions, they have several vital contributions that need to be rearranged into structured decisional coaching.
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