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Related Concept Videos

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Comprehensive Autopsy Program for Individuals with Multiple Sclerosis
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Lived experience of persons with multiple sclerosis: A qualitative interview study.

Sofia Persson1,2, Ann-Christine Andersson1,3, Boel Andersson Gäre1,2

  • 1Jönköping Academy for Improvement of Health and Welfare, School of Health and Welfare, Jönköping University, Jönköping, Sweden.

Brain and Behavior
|May 29, 2023
PubMed
Summary
This summary is machine-generated.

This study explored the lived experiences of individuals with multiple sclerosis (MS) in Sweden. Findings highlight the need for healthcare services that acknowledge diverse patient perspectives and coproduce care for better quality of life.

Keywords:
coproductionmultiple sclerosis carepatient experiencequality improvement

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Area of Science:

  • Neurology
  • Qualitative Health Research
  • Patient Experience

Background:

  • Multiple sclerosis (MS) is a chronic autoimmune disease significantly impacting quality of life and function.
  • Evolving therapies have improved MS prognosis, necessitating a deeper understanding of patient perspectives.
  • Acknowledging lived experiences is crucial for developing patient-centered care strategies.

Purpose of the Study:

  • To explore the lived experiences of individuals with multiple sclerosis (MS) within a Swedish healthcare context.
  • To identify key themes and patterns in the everyday lives and healthcare interactions of people with MS.
  • To inform the development of more precise and personalized care services for the MS population.

Main Methods:

  • Qualitative interview study employing purposeful and random sampling.
  • Conducted 10 in-depth interviews with individuals living with MS.
  • Utilized inductive thematic content analysis to interpret interview data.

Main Results:

  • Identified 4 overarching themes: perspectives on life and health, influence on everyday life, relations with healthcare, and shared healthcare processes.
  • Revealed shared experiences in diagnosis, future planning, and coordination, alongside diverse individual needs and knowledge-building.
  • Highlighted variations in patient experiences regarding relationships, personal requirements, symptoms, and consequences.

Conclusions:

  • Emphasizes the necessity for diverse, coproduced healthcare services that acknowledge the complexity of MS and individual patient experiences.
  • Advocates for greater recognition of personal integrity and varied ways of knowing in healthcare design.
  • Suggests integrating these qualitative findings with quantitative data for comprehensive insights into MS care.