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Updated: Jul 28, 2025

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

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Parental perceptions and experiences of care in the surgical neonatal intensive care unit

Jennifer Y Lam1, Alexandra Howlett2, Lori M Stephen2

  • 1Division of Pediatric Surgery, Western University, Children's Hospital-London Health Sciences Centre, B1-188, 800 Commissioners Rd. E, London, ON, N6A 5W9, Canada. Jennifery.lam@lhsc.on.ca.

Pediatric Surgery International
|June 1, 2023
PubMed

Insights

Parents undergoing the surgical neonatal intensive care unit (NICU) experience face significant stress. Addressing parental well-being, caregiver roles, team communication, and discharge training can improve family-centered care for infants undergoing surgery.

Area of Science:

  • Neonatal surgery
  • Pediatric intensive care
  • Family-centered medicine

Background:

  • Neonatal intensive care units (NICUs) present significant stress for parents when newborns require surgery.
  • Understanding the parental perspective is crucial for enhancing care in surgical NICUs.
  • The neonatal enhanced recovery after surgery (ERAS®) guideline implementation can be refined through parental feedback.

Purpose of the Study:

  • To explore the surgical NICU experience from the parents' perspective.
  • To identify key areas for improving the parental experience in a surgical NICU setting.
  • To integrate parental feedback into the neonatal ERAS® guideline implementation strategy.

Main Methods:

  • A focus group was conducted with five parents of infants in a surgical NICU.
  • Discussions centered on parents' unique perspectives and experiences within the surgical NICU environment.
  • Inductive analysis was employed to identify emergent themes and concepts from the qualitative data.

Main Results:

  • Four major themes emerged, significantly impacting the parental surgical NICU experience.
  • Themes included parental physical and emotional state, altered caregiver roles, care team dynamics (communication and consistency), and discharge process improvements.
  • Graduated, hands-on training was identified as a method to ease the discharge process.

Conclusions:

  • The neonatal ERAS® guideline incorporates elements that address parental stressors identified in this study.
  • Incorporating the parental perspective can enhance clinicians' understanding of the surgical NICU experience.
  • This understanding can improve family-centered care for infants and families in surgical NICUs.
Abstract

Keywords:
NeonatalParental experienceParental perceptionSurgery

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