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Growing Up Can Be Hard to Do: Reimagining 1 Structurally Supportive Pediatric-to-Adult Transitions of Care from a
Michelle Munyikwa1, Charles K Hammond2, Leanne Langmaid3
1Resident physician in combined internal medicine and pediatrics at the University of Pennsylvania Health System and Children's Hospital of Philadelphia, United States.
Insights
Transition medicine addresses medically complex youth moving to adult care, emphasizing structural competency and human rights. This approach aims for equitable, global chronic care solutions, improving patient well-being and health equity.
Area of Science:
- Public Health
- Medical Ethics
- Global Health
Background:
- Increased life expectancies and chronic diseases necessitate improved public health interventions.
- Transition from pediatric to adult care is critical for medically complex adolescents and young adults.
- Current transition medicine models primarily serve high-income countries.
Purpose of the Study:
- To explore a human rights-based framework for transition medicine using structural competency.
- To highlight disparities in pediatric-to-adult care transitions.
- To propose a more globally applicable model for transition medicine.
Main Methods:
- Case-based analysis of patient experiences transitioning between care systems.
- Application of structural competency principles to understand systemic barriers.
- Examination of disparities including social stigma, insurance stratification, and readiness challenges.
Main Results:
- Identified significant disparities in transition readiness and care access.
- Highlighted the impact of social stigma, insurance type, and family dynamics.
- Demonstrated the limitations of current transition medicine approaches.
Conclusions:
- Transition medicine requires a human rights-based approach prioritizing structural solutions.
- Multisectoral integration and holistic mental health support are crucial.
- A global framework grounded in structural competency can improve chronic care transitions worldwide.
Abstract:
Extended life expectancies and shifting dynamics in chronic disease have changed the landscape of public health interventions worldwide, with an increasing emphasis on chronic care. As a result, transition from pediatric to adult care for medically complex adolescents and young adults is a growing area of intervention. Transition medicine is a nascent field whose current emphasis is on middle- and high-income countries, and thus far its methods and discourse have reflected those origins. Through several case-based examples, this paper aims to highlight the possibilities of an analytic approach grounded in structural competency for transforming transition medicine through a human rights-based framework, with an emphasis on imagining a more global framework for transition medicine. Our cases highlight the disparities between patients navigating pediatric to adult-based care, illuminating social stigma, stratification between public and private insurances, engagement in risk-taking behaviors, family conflict, and challenges with transition readiness. To reimagine transition medicine so that it is based on human rights, we must prioritize structural solutions that embrace multisectoral integration and holistic mental health support rather than oppress and marginalize these critical systemic adaptations. We aim to reconfigure this scaffolding to center structures that integrate holistic well-being and imagine alternate realities to healing. Our work contributes to the literature bringing structural competency to new spaces of clinical practice, contextualizing new frontiers for the exploration of chronic diseases across diverse clinical contexts worldwide.
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