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Pirate Talk: Navigating Practical, Ethical, and Legal Issues Associated with Biomedical Citizen Science Interview

Christi J Guerrini1, Whitney Bash Brooks1, Sheryl A McCurdy2

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This study explores challenges in interviewing biomedical citizen scientists, particularly those outside traditional institutions. It offers practical, ethical, and legal guidance for researchers to ensure trustworthy and respectful engagement in citizen science.

Keywords:
DIY biologycommunity scienceprivacyqualitative researchsafetyterminology

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Area of Science:

  • Biomedical citizen science research
  • Qualitative research methodologies
  • Participant engagement in science

Background:

  • In-depth interviews are crucial for understanding motivations and concerns in citizen science.
  • Challenges in qualitative research within citizen science are context-dependent.
  • Existing literature on interviewing discrete populations provides a foundation.

Purpose of the Study:

  • To identify and address practical, ethical, and legal issues in interviewing biomedical citizen scientists.
  • To focus on bottom-up citizen scientists with limited institutional ties.
  • To support future research and understanding of participatory science.

Main Methods:

  • Drawing on the authors' experiences conducting qualitative research.
  • Incorporating insights from other qualitative researchers in the field.
  • Analyzing practical, ethical, and legal considerations specific to citizen science.

Main Results:

  • Defining interview populations requires careful consideration.
  • Building trust is essential, especially given historical dynamics.
  • Adapting research to the open culture of citizen science is key.
  • Managing potential safety concerns is a critical aspect.

Conclusions:

  • Researchers must navigate unique challenges when interviewing citizen scientists.
  • Respecting participants and maintaining study integrity are paramount.
  • Further research is needed to refine best practices in this area.