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Parent Perspectives on Electronic Health Record-Based Social Needs Screening and Documentation: A Qualitative Study
Jennifer H LeLaurin1, Jacqueline De La Cruz1, Ryan P Theis1
1Department of Health Outcomes and Biomedical Informatics (JH LeLaurin, J De La Cruz, RP Theis, LA Thompson, EA Shenkman, and RG Salloum),University of Florida College of Medicine, Gainesville.
Parents want electronic health record (EHR) screening for social needs but have privacy concerns. Clear communication and varied delivery methods are key for family-centered pediatric care interventions.
Area of Science:
- Pediatric primary care
- Health informatics
- Social determinants of health
Background:
- Social needs interventions improve child health but are not standard in pediatric care.
- Electronic health records (EHRs) can support these interventions, yet parent input is missing.
- Parental engagement is crucial for developing effective EHR-based social needs interventions.
Purpose of the Study:
- To evaluate parent perspectives on EHR-based social needs screening and documentation.
- To identify family-centered strategies for designing and implementing these screening tools.
- To enhance the integration of social needs interventions into routine pediatric care.
Main Methods:
- Qualitative study involving 20 parents from four pediatric clinics.
- Parents completed an existing EHR social risk questionnaire.
- Semi-structured interviews explored acceptability and preferences for screening administration.
Main Results:
- Parents recognized the benefits of social needs screening but raised concerns about privacy and data usage.
- Opinions differed on preferred screening methods: self-administered electronic questionnaires versus face-to-face interviews.
- Transparency regarding the purpose and use of collected social needs data was highly valued.
Conclusions:
- Findings can guide the development of acceptable and feasible EHR-based social needs interventions.
- Clear communication and multimodal delivery methods may improve intervention uptake.
- Future research should involve diverse stakeholders to create truly family-centered and clinically implementable interventions.
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