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The Interstitial Cystitis/Bladder Pain Syndrome Clinical Picture: A Perspective from Patient Life Experience
J Curtis Nickel1, Dean A Tripp1,2, Darren Beiko1
1Department of Urology, Queen's University at Kingston, Kingston, Ontario, Canada.
Urology Practice
|June 14, 2023
Summary
Optimal management of interstitial cystitis/bladder pain syndrome (IC/BPS) requires personalized data beyond standard assessments. This study developed a comprehensive question series to capture the full clinical picture, including biopsychosocial factors, for better treatment strategies.
Area of Science:
- Urology
- Psychosomatic Medicine
- Qualitative Research
Background:
- Interstitial cystitis/bladder pain syndrome (IC/BPS) management often lacks personalized data.
- Standard urological assessments and symptom questionnaires may not capture the full clinical picture.
Purpose of the Study:
- To develop a best-evidence series of questions for IC/BPS patients.
- To explore the total clinical picture, including biopsychosocial parameters, for personalized management.
Main Methods:
- Qualitative approach using focus groups and individual interviews.
- Content development and validity analyses to create a question series.
- Administration of the question series to a new sample of IC/BPS patients.
Main Results:
- The final question series covered pain, urination, flares, and 10 impacted domains.
- Questions addressed thoughts, attitudes, suicidal ideation, and coping mechanisms.
- Results highlighted that pain and urination symptoms are primary, but associated nonurological conditions and biopsychosocial factors are crucial for the total clinical picture.
Conclusions:
- Biopsychosocial information gathered is vital for healthcare professionals.
- Enables the development of personalized treatment strategies for IC/BPS.
- Facilitates individualized, patient-directed outcomes beyond just bladder pain and urination symptoms.
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