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Social challenges experienced by Hepatitis B patients: A mixed method study.

Meenakshi Tomar1, Tarika Sharma1, Manya Prasad2

  • 1College of Nursing, Institute of Liver and Biliary Sciences, New Delhi, India.

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|June 14, 2023
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Summary

Patients with Hepatitis B face significant social challenges, including stigma and discrimination from family, workplaces, and healthcare settings. Increased awareness and a holistic approach are crucial for improving their quality of life.

Keywords:
DisclosureHepatitis Bdiscriminationmixed-method studysocial challengesstigma

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Area of Science:

  • Hepatology
  • Social Sciences
  • Public Health

Background:

  • Chronic Hepatitis B infection significantly impacts patients' lives.
  • Living with Hepatitis B is associated with social challenges like stigma, disclosure issues, and discrimination.

Purpose of the Study:

  • To assess the social challenges faced by Hepatitis B-positive patients undergoing treatment.
  • To identify the specific social difficulties encountered in a specialized liver hospital setting.

Main Methods:

  • A mixed-method research design combining descriptive and thematic analysis.
  • Data collection via a modified Hepatitis B stigma assessment tool and semi-structured interviews.
  • Inclusion of 180 Hepatitis B-positive patients in the quantitative phase and 9 in the qualitative phase.

Main Results:

  • The majority of patients (92%) experienced low stigma, with 5.1% reporting high stigma.
  • Key social challenges identified include reactions to diagnosis, psychological issues, and stigma in family, workplace, and healthcare settings.
  • Mean age of participants was 45 years, with 80% being male.

Conclusions:

  • Hepatitis B patients encounter social challenges including lack of awareness, psychological distress, and stigma from various social circles.
  • Enhanced understanding and awareness of Hepatitis B are essential to combat stigma and discrimination.
  • A holistic approach is necessary for comprehensive patient care.