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Community-engaged training in informed consent.

Kris M Markman^1,2, Noelle P Weicker¹, Andreas K Klein^1,3

¹Tufts Clinical and Translational Science Institute, Tufts University, Boston, MA, USA.

Journal of Clinical and Translational Science

|June 14, 2023

Summary

This summary is machine-generated.

Training clinical research staff on informed consent using community members as simulated patients improves communication skills. This approach enhances understanding of diverse perspectives and patient responses, boosting research recruitment and retention.

Keywords:

Workforce development community engagement informed consent research coordinators training

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Area of Science:

Clinical Research
Patient Engagement
Medical Education

Background:

Informed consent training for clinical research staff often lacks interpersonal skill development.
This deficit impacts patient recruitment and retention in clinical trials.
Effective communication is crucial for ethical research conduct.

Purpose of the Study:

To evaluate a novel training program for clinical research coordinators (CRCs) on informed consent communication.
To assess the impact of using community members as simulated patients in these trainings.
To determine if this method improves CRC skills and community engagement.

Main Methods:

Developed and implemented regular training sessions for CRCs and research staff.
Utilized community members as simulated patients for role-playing informed consent scenarios.
Assessed the training's reach and effectiveness through participant feedback and observed skill improvement.

Main Results:

Training with community stakeholders provided CRCs with diverse patient perspectives and real-world insights.
Simulated patient interactions enhanced CRCs' ability to navigate varied patient responses.
Community involvement fostered inclusivity and addressed traditional power dynamics in research.

Conclusions:

Integrating community members as simulated patients is an effective strategy for informed consent training.
This approach improves communication skills, empathy, and community engagement for CRCs.
Recommendations include expanding simulated consent exercises with community feedback for enhanced research practice.