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Paediatric family activation rapid response (FARR) in tertiary healthcare organisations: Protocol for an online,
Takawira C Marufu1,2, Nicola Taylor3, Shannon Cresham Fox3
1Nottingham Children's Hospital, Nottingham University Hospitals NHS Trust, Room SC3084, C-Floor, South Block, Queen's Medical Centre Campus, Derby Road, Nottingham, NG7 2UH, UK. Takawira.marufu@nuh.nhs.uk.
Insights
Families and healthcare professionals will co-design a rapid response app to help recognize and treat deteriorating children earlier. This tool aims to improve care for children and young people (CYP) by facilitating timely interventions.
Area of Science:
- Pediatric critical care medicine
- Health informatics
- Patient engagement
Background:
- Clinical deterioration in children and young people (CYP) leads to 85% of unplanned critical care admissions.
- Early recognition and intervention are crucial for preventing adverse outcomes.
- Families play a vital role in identifying and reporting deterioration in CYP.
Purpose of the Study:
- To develop a family activation rapid response online application prototype.
- To improve the recognition and treatment of deteriorating CYP through technology.
- To support the Paediatric Critical Care Outreach Team (PCCOT) in family-activated responses.
Main Methods:
- A sequential, multiple-methods study design was employed.
- A systematic review of international literature on paediatric family activation rapid response interventions.
- Experience-based co-design (EBCD) workshops involving parents, caregivers, and healthcare professionals.
Main Results:
- The study protocol outlines the development process for a novel online application.
- Participant input will inform the app's content, functionality, aesthetics, and multilingual capabilities.
- A prototype multilingual web-based application will be developed based on stakeholder feedback.
Conclusions:
- Co-design involving families and healthcare professionals is key to developing effective tools for pediatric critical care.
- The developed application aims to empower families and improve response times for deteriorating CYP.
- This initiative supports the integration of family activation into critical care outreach services.
Introduction:
At least 85% of unplanned admissions to critical care wards for children and young people (CYP) are associated with clinical deterioration. CYP and their families play an integral role in the recognition of deterioration. The Paediatric Critical Care Outreach Team (PCCOT) supports the reduction of avoidable harm through earlier recognition and treatment of the deteriorating child, acting as a welcome conduit between the multiprofessional teams, helping ensure that CYP gets the right care, at the right time and in the right place. This positions PCCOT well to respond to families who call for help as part of family activation.
Aim:
This protocol details the methods and process of developing a family activation rapid response online application.
Methods:
This is a single-centre, sequential, multiple methods study design. Firstly, a systematic review of the international literature on rapid response interventions in paediatric family activation was conducted. Findings from the review aimed to inform the content for next stages; interviews/ focus groups and experience-based co-design (EBCD) workshops.
Participants:
parents / caregivers whose children have been discharged or admitted to an acute care hospital and healthcare professionals who care for paediatric patients (CYP). During interviews and workshops participants' opinion, views and input will be sort on designing a family activation rapid response online-app, detailing content, aesthetics, broad functionality and multi-lingual aspects. Further areas of discussions include; who will use the app, access, appropriate language and terminology for use. A suitable app development company will be identified and will be part of the stakeholders present at workshops. Data obtained will be used to develop a multi-lingual paediatric family activation rapid response web based application prototype.
Ethics And Dissemination:
Full ethical approval was received from the Wales Research Ethics Committee 2. Cardiff; REC reference: 22/WA/0174. The findings will be made available to all stakeholders.
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