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Paediatric end-of-life care at home.
Signe Hoff Kobborg Larsen1, Inger Bording2, Margit Bjergegaard2
1Medical student, Aarhus University, Denmark.
International Journal of Palliative Nursing
|June 20, 2023
Summary
Primary care nurses found a shared care model beneficial for supporting terminally ill children at home. This model improved nurses' preparedness in end-of-life care, cooperation, and emotional management.
Area of Science:
- Pediatric Nursing
- Palliative Care
- Healthcare Models
Background:
- Terminally ill children benefit from end-of-life care at home with family.
- Primary care nurses (PCNs) are essential for this care.
- A model for specialized pediatric palliative care teams (SPPCTs) supporting PCNs is lacking.
Purpose of the Study:
- To evaluate a shared care model between SPPCTs and PCNs in pediatric end-of-life care.
- To understand PCNs' perceptions of this collaborative model.
Main Methods:
- A 23-item questionnaire was administered to PCNs.
- The study involved PCNs caring for 14 terminally ill children.
- Descriptive statistics were used to analyze the data.
Main Results:
- 78.9% of nurses felt better prepared for a child's death after an introductory meeting.
- 70.6% reported improved cooperation with family members.
- 88.9% felt the model positively influenced their future involvement in pediatric palliative care.
Conclusions:
- The shared care model received positive evaluations from PCNs.
- Clear agreements and specialist support are vital for effective end-of-life care.
- Further research is needed to confirm if the model optimizes palliative care and family security.
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