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Satisfaction With Participation in the First STEPS Behavioral Intervention: Experiences of Parents of Young Children
Marissa N Baudino1, Hailey Inverso2, Christine Wang2
1Department of Pediatrics, Baylor College of Medicine and Texas Children's Hospital, USA.
Insights
Parents of children with new type 1 diabetes (T1D) reported high satisfaction with a stepped-care behavioral intervention. This support improved parental well-being and suggests feasibility for routine clinical integration.
Area of Science:
- Pediatrics
- Psychology
- Endocrinology
Background:
- New-onset type 1 diabetes (T1D) in young children causes parental distress and management challenges.
- The First STEPS trial previously showed a stepped-care intervention reduced parental depressive symptoms.
Purpose of the Study:
- To assess parental satisfaction with the First STEPS stepped-care behavioral intervention for T1D.
- To inform potential implementation and refinement of the intervention for future trials.
Main Methods:
- 157 parents of children with new T1D completed satisfaction questionnaires (n=153) and qualitative interviews (n=17) at 9 months.
- Quantitative satisfaction ratings and thematic analysis of interviews were used to evaluate experiences.
Main Results:
- Over 95% of participants rated study procedures positively.
- Intervention group parents reported high satisfaction with all intervention steps.
- Qualitative themes highlighted enhanced self-efficacy and social support from the intervention.
Conclusions:
- High parental satisfaction supports the integration of this stepped-care behavioral intervention into routine care for T1D.
- The intervention is well-received and may improve outcomes for families managing childhood T1D.
Objective:
Parents of young children with new-onset type 1 diabetes (T1D) often experience significant distress and struggle with T1D management during a challenging developmental stage. The First STEPS (Study of Type 1 in Early childhood and Parenting Support) trial evaluated a stepped-care behavioral intervention comprising increasingly intensive intervention steps (peer parent coach, cognitive-behavioral counseling, consultations with diabetes educator and psychologist) based on need. The intervention improved parental depressive symptoms compared to usual care. Subsequently, we examined parent satisfaction with the intervention to guide potential implementation and refinement for future trials.
Methods:
Participants were 157 parents of young children newly diagnosed with T1D. At 9 months post randomization, n = 153 completed satisfaction questionnaires and n = 17 completed qualitative interviews. Satisfaction ratings about trial procedures and each intervention step were summarized. We used thematic analysis with the interview transcripts to generate themes related to participants' experiences in the trial overall and intervention specifically. We explored differences in themes between participants who did versus did not respond to the intervention and among those who experienced different intervention steps.
Results:
Most participants in both arms rated study participation and methods positively (>95%), and those completing interviews described high satisfaction with study procedures overall, retention incentives, and contact with study staff. Intervention participants' satisfaction ratings were high across steps. Two qualitative themes reflected satisfaction with the intervention enhancing self-efficacy and social support.
Conclusions:
High satisfaction suggests implementing a stepped-care behavioral intervention as part of routine clinical care following T1D diagnosis would be well received.
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