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Methodological changes to improve retention: Results from two pediatric cognitive behavioral therapy studies
Lisa DeMarni Cromer1, Brooke A F Pangelinan1, Elissar El Sabbagh1
1Department of Psychology, The University of Tulsa, Tulsa, Oklahoma, USA.
Journal of Clinical Psychology
|June 22, 2023
Summary
Improving pediatric clinical trial retention requires adapting protocols based on participant feedback. Study 2 significantly increased retention by enhancing engagement, flexibility, and incentives compared to Study 1.
Area of Science:
- Clinical Psychology
- Pediatric Research
- Behavioral Science
Background:
- Pediatric clinical research faces significant retention challenges.
- Child participant retention is further complicated by reliance on caregiver engagement.
Purpose of the Study:
- To describe protocol adaptations that improved participant retention in pediatric cognitive behavioral pilot studies.
- To identify key factors influencing retention in child-focused clinical trials.
Main Methods:
- Study 1 (N=20) focused on rapport, flexible scheduling, location choice, and incentives.
- Study 2 (N=31) enhanced continuity of care, scheduling flexibility, reduced participant burden, and improved incentives.
Main Results:
- Study 1 retention was 65% (13/20 participants).
- Study 2 achieved a 93.5% retention rate (29/31 participants).
Conclusions:
- Responding to participant feedback on barriers and burdens is crucial for retention.
- Protocol modifications, including tailored incentives and reduced session burden, significantly improve pediatric trial retention.
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