Related Experiment Video

Updated: Jul 25, 2025

Murine Model of Central Venous Stenosis using Aortocaval Fistula with an Outflow Stenosis
06:17

Murine Model of Central Venous Stenosis using Aortocaval Fistula with an Outflow Stenosis

Published on: July 11, 2019

7.4K

Vascular Anomalies Care in the United States: A Cross-Sectional National Survey

Sally Cohen-Cutler1, Julie Blatt2, Sherry Bayliff3

  • 1Cancer and Blood Disease Institute, Children's Hospital Los Angeles, Los Angeles, CA; Keck School of Medicine, University of Southern California, Los Angeles, CA.

The Journal of Pediatrics
|June 23, 2023
PubMed

Insights

Multidisciplinary vascular anomalies (VA) teams are scarce in the Midwest and Northwest US. Most teams lack medical geneticists, impacting care standards and access.

Area of Science:

  • Vascular Surgery
  • Pediatric Healthcare
  • Medical Genetics

Background:

  • Multidisciplinary vascular anomalies (VA) teams are crucial for comprehensive patient care.
  • Understanding the current landscape of these teams in the US is essential for identifying gaps and improving access.

Purpose of the Study:

  • To characterize the distribution, composition, and practice patterns of multidisciplinary VA teams across the United States.
  • To identify geographic disparities and variations in the structure of VA care programs.

Main Methods:

  • A cross-sectional survey was conducted among 142 children's hospitals in the US offering VA care.
  • Data collected included clinic location, medical staffing, research participation, and treatments offered, between October 2021 and July 2022.

Main Results:

  • A 67% response rate (95 hospitals) revealed significant geographic gaps, particularly in the Midwest and Northwest.
  • Most teams were at academic centers (89%), with 56% operating as multidisciplinary clinics.
  • Key specialties included hematology-oncology, interventional radiology, dermatology, and plastic surgery, but only 38% included medical geneticists.

Conclusions:

  • Significant portions of the US lack access to multidisciplinary VA care.
  • VA programs exhibit considerable variation in composition, with a notable absence of medical geneticists in most.
  • Findings highlight the need to address disparities in access and establish standardized care for VA management.
Abstract

Keywords:
PIK3CA-related overgrowth syndromelymphatic malformationmultidisciplinary careovergrowth syndromevenous malformation

More Related Videos

A Patient-Derived Xenograft Model for Venous Malformation06:51

A Patient-Derived Xenograft Model for Venous Malformation

Published on: June 15, 2020

5.4K
Comprehensive Endovascular and Open Surgical Management of Cerebral Arteriovenous Malformations14:58

Comprehensive Endovascular and Open Surgical Management of Cerebral Arteriovenous Malformations

Published on: October 20, 2017

9.7K

Related Concept Videos

Varicose Veins II: Diagnostic Studies and Interprofessional Care01:26

Varicose Veins II: Diagnostic Studies and Interprofessional Care

Varicose veins, or varicosities, develop when the valves in the veins, which control blood flow, weaken or damage. It causes blood to pool and the veins to enlarge. Understanding the clinical manifestations, diagnostic approaches, and management options for varicose veins is crucial for effective treatment and relief.Clinical manifestationsClinical manifestations of varicose veins include a heavy, achy feeling or pain after prolonged standing or sitting. This discomfort can often be relieved by...
18
Varicose Veins I: Introduction01:26

Varicose Veins I: Introduction

Varicose veins, or varicosities, are abnormally dilated and twisted superficial veins caused by venous valve incompetence. This condition commonly affects the lower extremities, especially the saphenous veins, due to the higher pressure from prolonged standing and walking. However, varicosities can also occur in other areas, such as the esophagus, vulva, spermatic cords, and anorectal region.Etiology and typesPrimary varicose veins, often idiopathic, are more common in women due to inherent...
12
Esophageal Varices-II: Clinical Features and Management01:28

Esophageal Varices-II: Clinical Features and Management

Esophageal varices often manifest as gastrointestinal bleeding episodes, presenting symptoms like hematemesis (vomiting of blood), hematochezia (passing fresh blood via the rectum), and melena (black, tarry stools). Other signs can include weight loss, anorexia, abdominal discomfort, jaundice, pruritus, altered mental status, and muscle cramps.
In the initial assessment, a thorough review of the patient's medical history is vital to identify risk factors such as liver disease, alcohol...
99
Venous Thrombosis III: Interprofessional Care01:29

Venous Thrombosis III: Interprofessional Care

Venous thrombosis requires effective prevention and treatment strategies to improve patient outcomes and reduce potential complications.Prevention StrategiesHealthcare providers must prioritize preventing venous thromboembolism (VTE) for all adult patients upon admission. Interventions depend on bleeding and thrombosis risk, medical history, current medications, diagnoses, planned procedures, and patient preferences. Patients on bed rest should change positions every two hours and, if not...
11
Aneurysm III: Interprofessional Care01:26

Aneurysm III: Interprofessional Care

Aneurysm management involves either conservative medical therapy or surgical intervention, depending on the size and symptoms of the aneurysm. Conservative management is generally reserved for smaller, asymptomatic aneurysms, while larger or symptomatic aneurysms often necessitate surgical repair.Conservative Medical TherapyFor small, asymptomatic aneurysms, particularly abdominal aortic aneurysms (AAA) less than 5.5 centimeters in diameter, conservative medical therapy is recommended. This...
12
Esophageal Varices-I: Introduction01:24

Esophageal Varices-I: Introduction

Esophageal varices are dilated, tortuous veins which are found mainly in the submucosa of the lower esophagus but which may also appear higher up or extend into the stomach. They develop due to increased pressure in the portal venous system, often as a result of liver cirrhosis. This condition scars and damages the liver, impeding normal blood flow through the portal vein. To compensate, blood seeks alternative pathways, forming fragile new vessels (varices) in the esophagus and stomach. These...
199