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Related Concept Videos

Continuing Care01:25

Continuing Care

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Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
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Ethical Concerns in Healthcare:
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An interdisciplinary team includes many healthcare professionals working together and utilizing their skills, knowledge, and expertise to provide holistic and quality patient care. Here are a few more healthcare professionals.
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Understanding pediatric palliative care within interdisciplinary palliative programs: a qualitative study.

Patricia Rico-Mena1,2, Javier Güeita-Rodríguez3, Ricardo Martino-Alba4

  • 1Department of Physiotherapy, Chiropody and Dance, Physical Therapy and Health Sciences Research Group, Universidad Europea de Madrid, C. Tajo, S/N, 28670 Villaviciosa de Odón, Madrid, Spain.

BMC Palliative Care
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Summary
This summary is machine-generated.

Pediatric palliative care is a distinct, life-affirming service for children with complex conditions. An interdisciplinary team approach is crucial for comprehensive care, enhancing communication and coordination for better outcomes.

Keywords:
ChildPalliative careParentsPatient care teamPediatricsQualitative research

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Area of Science:

  • Pediatrics
  • Palliative Care
  • Healthcare Management

Background:

  • Pediatric palliative care (PPC) is essential for children with complex, life-threatening conditions.
  • Understanding the delivery of PPC from multiple perspectives is vital for optimizing care.

Purpose of the Study:

  • To describe the process of delivering pediatric palliative care.
  • To capture the perspectives of both the pediatric interdisciplinary team and the children's parents.

Main Methods:

  • Qualitative descriptive case study design.
  • Purposeful sampling within a specialized pediatric palliative care unit in Madrid, Spain.
  • Data collection through semi-structured interviews, focus groups, and field notes, followed by thematic analysis.

Main Results:

  • Two key themes emerged: PPC has a unique identity focused on life and specialized care, often in the home environment.
  • The interdisciplinary team is central, fostering a comprehensive view, communication, and coordination.
  • Professionals develop specific skills in communication, decision-making, and adaptability.

Conclusions:

  • Professional and parental perspectives inform realistic goals for pediatric palliative care.
  • Establishing dedicated PPC teams is a necessary organizational change for healthcare systems.
  • Recommendations include promoting training, horizontal organizations, enhanced communication, and case coordination.