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Published on: July 5, 2022
Availability and access to pediatric diabetes care: a global descriptive study
Aman B Pulungan1,2,3,4, Carine de Beaufort4,5,6, Amajida F Ratnasari7
1Department of Child Health, Faculty of Medicine Universitas Indonesia - Cipto Mangunkusumo Hospital, Jakarta, Indonesia.
Insights
Global access to type 1 diabetes mellitus (T1DM) care is unequal, with significant disparities in insulin, testing, and device availability. Many patients face out-of-pocket costs, highlighting the need for improved national programs.
Area of Science:
- Pediatric Endocrinology
- Global Health Equity
- Diabetes Management
Background:
- Type 1 diabetes mellitus (T1DM) prevalence is rising globally.
- Inequalities in essential T1DM care persist a decade after insulin's discovery.
- Specific details on insulin and medical device availability worldwide remain unclear.
Purpose of the Study:
- To investigate global access, availability, and affordability of pediatric T1DM care.
- To identify disparities in essential diabetes medications and medical devices.
- To assess patient financial responsibility for T1DM management.
Main Methods:
- A cross-sectional electronic survey was distributed globally via the International Pediatric Association (IPA).
- Standardized questions assessed pediatric diabetes care access and availability.
- Responses from 25 pediatric societies across six regions were analyzed.
Main Results:
- Pediatric endocrinologists, often with pediatricians or adult endocrinologists, manage T1DM care.
- 40% of patients bear partial/complete costs for insulin, with higher out-of-pocket expenses for A1C, C-peptide, and antibody testing.
- Government support is limited for insulin pumps (20%) and continuous glucose monitors (12%).
Conclusions:
- Considerable disparities exist in T1DM testing, medication, and support access, availability, and affordability.
- Significant out-of-pocket payments for care are common in many countries.
- Country- and region-specific national program improvements are crucial for optimal global pediatric T1DM care.
Abstract:
A decade since the discovery of insulin, the increasing prevalence of type 1 diabetes mellitus (T1DM) has underscored the prevailing inequalities in the provision of essential care for T1DM worldwide. However, the details on the availability of insulin types and associated medical devices remain unclear. A cross-sectional electronic survey was distributed across a global network of pediatric societies under the umbrella of the International Pediatric Association (IPA). Access to and availability of pediatric diabetes care were investigated using standardized questions. Responses from 25 of 132 pediatric societies across six regions were included. Pediatric endocrinologists typically manage T1DM together with pediatricians or adult endocrinologists. Nonetheless, 24% of the respondents reported pediatricians to be the sole healthcare professionals. According to the respondents, the patients were either partially or completely responsible for payments of insulin (40%), A1C (24%), C-peptide (28%), and antibody testing for diagnosis (28%). Government support is generally available for insulin, but this was merely 20% for insulin pumps and 12% for continuous glucose monitors. There are considerable disparities in the access, availability, and affordability of diabetes testing, medications, and support between countries with significant out-of-pocket payments for care. Country- and region-specific improvements to national programs are necessary to achieve optimal pediatric diabetes care globally.
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