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Advancing Dialogue About Consent and Molecular HIV Surveillance in the United States: Four Proposals Following a
Stephen Molldrem1, Anthony K J Smith2, Alexander McCLELLAND3
1Institute for Bioethics and Health Humanities, University of Texas Medical Branch.
Abstract:
Policy Points Molecular HIV surveillance and cluster detection and response (MHS/CDR) programs have been a core public health activity in the United States since 2018 and are the "fourth pillar" of the Ending the HIV Epidemic initiative launched in 2019. MHS/CDR has caused controversy, including calls for a moratorium from networks of people living with HIV. In October 2022, the Presidential Advisory Council on HIV/AIDS (PACHA) adopted a resolution calling for major reforms. We analyze the policy landscape and present four proposals to federal stakeholders pertaining to PACHA's recommendations about incorporating opt-outs and plain-language notifications into MHS/CDR programs.
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