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Designing dementia care activation program for Filipino American caregivers
Mary Dioise Ramos1, Jarrett Heath2, Danielle Lee2
1Wellstar School of Nursing, Kennesaw State University, Kennesaw, Georgia.
Public Health Nursing (Boston, Mass.)
|July 7, 2023
Summary
Filipino American caregivers need culturally tailored programs for Alzheimer's Disease and related dementia (ADRD) support. Key elements include education, community resources, and cultural values for better care partner adaptation.
Area of Science:
- Gerontology
- Nursing
- Public Health
Background:
- Alzheimer's Disease and related dementia (ADRD) poses significant challenges for family caregivers.
- Filipino Americans exhibit unique cultural values and face specific barriers in caregiving.
- Culturally tailored interventions are crucial for effective support of these caregivers.
Purpose of the Study:
- To identify essential components for community adaptation in a care partner activation program.
- To tailor the program for Filipino American family caregivers of individuals with ADRD.
Main Methods:
- Focus group interviews were conducted.
- Participants included community nurse leaders, stakeholders, and family caregivers of patients with ADRD.
Main Results:
- Key components for community adaptation identified: disease education, community services, support groups, spiritual/cultural values, and transportation access.
- These elements are vital for successful integration of care partner support programs.
Conclusions:
- A culturally tailored program incorporating identified components can improve the quality of life for Filipino American caregivers and ADRD patients.
- Nurses must be culturally competent to support caregivers effectively, providing education, resource connection, and advocating for responsive care.
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