Related Experiment Video
Updated: Jul 24, 2025
07:13
Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
4.4K
Development of a Family-Centered Communication Tool for Kidney Health in Premature Infants: Qualitative Focus Group
Michelle C Starr1, Samantha Wallace2, Courtney Moore3
1Division of Pediatric Nephrology, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, United States.
Journal of Participatory Medicine
|July 10, 2023
Summary
Caregivers of premature infants are open to discussing kidney health risks during NICU stays. Developing effective communication tools is key for long-term monitoring and adherence to care plans.
Area of Science:
- Neonatology
- Pediatric Nephrology
- Health Communication
Background:
- Premature infants face significant risks of acute kidney injury (AKI) and chronic kidney disease (CKD).
- The risk of CKD in premature infants is often underestimated by healthcare teams and caregivers.
- Effective communication strategies are crucial for ensuring proper follow-up and adherence to care for these vulnerable infants.
Purpose of the Study:
- To investigate family caregiver attitudes towards kidney health and risk communication during neonatal intensive care unit (NICU) admissions.
- To understand caregiver preferences for receiving information about the risk of CKD in premature infants.
Main Methods:
- Qualitative group sessions augmented with human-centered design methods (card sorting, projective methods, experience mapping).
- Inclusion of caregivers whose premature infants experienced AKI or other kidney complications.
- Assessment of both parent preferences and clinician perspectives.
Main Results:
- Caregivers and clinicians identified barriers and facilitators for long-term kidney monitoring and risk communication.
- Caregivers prioritized the type, depth, and timing of information delivery.
- Emphasis was placed on collaboration between hospital teams and primary care providers.
Conclusions:
- Family caregivers are receptive to discussions about kidney health during neonatal admissions.
- Future work will focus on developing and testing family-centered communication tools based on caregiver preferences.
Keywords:
acute kidney injurychronic kidney diseasehuman-centered designkidney healthneonatespatient-reported outcomesqualitative researchMore Related Videos
08:06Guided Differentiation of Mature Kidney Podocytes from Human Induced Pluripotent Stem Cells Under Chemically Defined Conditions
Published on: July 2, 2020
4.7K
11:50Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
26.5K
Related Concept Videos
01:28Chronic Kidney Disease III: Interprofessional Care
43
Chronic kidney disease (CKD) requires collaborative and comprehensive management. CKD progresses through stages and can lead to end-stage kidney disease (ESKD) if untreated. Interprofessional collaboration and patient education are crucial, enabling patients to manage their health and improve their quality of life.Diagnostic approach for chronic kidney diseaseThe diagnosis of CKD primarily focuses on the glomerular filtration rate (GFR), which assesses kidney function by measuring how well...
43
01:28Kidney Transplant I: Introduction
29
A kidney transplant is a surgical approach that involves replacing a non-functioning kidney with a healthy one from a donor. This procedure is often a treatment option for end-stage renal disease (ESRD) patients. The method requires careful recipient selection, including evaluating various medical and psychosocial factors. These criteria vary between transplant centers but generally include assessments of the patient's overall health, adherence to medical recommendations, and lifestyle...
29
01:16Kidney Transplant III: Nursing Management
39
Postoperative Nursing Management for Kidney Transplant PatientsPostoperative nursing management care includes monitoring the surgical site, encouraging early movement, and promoting lung health through breathing exercises. Nurses also administer prescribed medications like H2-blockers, such as famotidine, or proton pump inhibitors, like omeprazole, to help prevent gastrointestinal ulcers and bleeding. Fungal infections in the mouth and bladder can result from immunosuppressive and antibiotic...
39
01:20Acute Kidney Injury V: Interprofessional Care
26
Acute Kidney Injury (AKI) requires a collaborative healthcare approach to restore renal function and prevent complications. Essential management strategies involve monitoring fluid and electrolyte balance, adjusting medications, initiating dialysis when necessary, and providing nutritional support.Fluid and Electrolyte ManagementFluid Monitoring: Regularly monitoring body weight, central venous pressure, and urine output helps detect fluid imbalances early. Patient intake and output are...
26
01:25Chronic Kidney Disease I: Introduction
41
Chronic Kidney Disease (CKD) arises when the kidneys progressively lose their ability to function, ultimately leading to end-stage kidney disease (ESKD). At this advanced stage, the kidneys can no longer filter waste or maintain essential body functions, requiring renal replacement therapy (RRT) through dialysis or a kidney transplant for survival.Early-stage chronic kidney disease and detection challengesIn CKD's early stages, symptoms often remain absent because healthy nephrons compensate...
41
01:18Chronic Kidney Disease IV: Nursing Management
26
Nursing management is essential for preventing complications, maintaining stability, and improving patients' quality of life in chronic kidney disease (CKD). By using a structured approach, nurses help slow CKD progression and support effective patient care.1. Comprehensive patient assessmentEffective management begins with nurses reviewing the patient’s medical history, and identifying key risk factors like diabetes, hypertension, and nephrotoxic drug use. Nurses assess signs of...
26