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The Role of Pediatric Palliative Care Following Nonaccidental Trauma
Trevor G Henderson1, Arne H Graff1, Megan J Thorvilson1
1Department of Pediatric and Adolescent Medicine, Mayo Clinic, Rochester, Minnesota, USA.
Insights
Pediatric palliative care (PPC) experts are crucial for infants with nonaccidental trauma (NAT) and severe prognoses. This case highlights PPC
Area of Science:
- Pediatric medicine
- Child abuse pediatrics
- Palliative care
Background:
- Child maltreatment and neglect necessitate specialized medical expertise.
- Children with life-limiting injuries require a multidisciplinary team approach.
- Existing literature often details pediatric palliative care (PPC) involvement after child abuse evaluations.
Observation:
- This case presents an infant with nonaccidental trauma (NAT) and a grave neurological prognosis.
- PPC was consulted due to the infant's critical condition and the mother's wishes.
- The mother aimed to prevent a life of medical dependency for her child.
Findings:
- This case illustrates the critical role of PPC in managing infants with severe nonaccidental trauma.
- PPC supported the mother through significant emotional and practical challenges.
- The mother's decision-making rights were respected throughout the process.
Implications:
- Early integration of PPC may be beneficial for infants experiencing severe nonaccidental trauma.
- PPC can provide essential support to families facing complex medical and emotional crises.
- This case underscores the importance of a coordinated approach between child abuse pediatrics and PPC.
Abstract:
All children experiencing child maltreatment/neglect require child abuse experts to offer the complex care needed, and for the child with potential life-limiting injuries, both child abuse and palliative care experts are integral to the team. The current literature describes the involvement of child abuse pediatrics after patients are already engaged with pediatric palliative care (PPC). Here we describe a case of an infant who suffered injuries after nonaccidental trauma (NAT) and the subsequent role of PPC. In the case described, PPC was consulted in the context of a grave neurological prognosis after NAT. The mother retained full decision-making rights, and she wanted to protect her daughter from a life dependent on others and medical technology. Our team supported the mother in the face of multiple layers of loss-her daughter, her relationship with the perpetrator, her home, and the threat of job loss due to time away.
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